Murphy.

I had my Daralex last Tuesday, September 18tth,  along with my day 1 Kyprolis after having 12 days off.  Was at the Cancer Center from 8 until about 3.  A little faster because my labs came back within the range needed.  Then day 2 of Kyprolis on the 19th.  Had a headache the night of my Daralex.  Dex had me up Tuesday night until 1.  Was fatigued after my treatments last week.  Felt okay by Saturday.

Yesterday, September 25th, had my chemo, Kyprolis and Dex.  Was up till about 12.  Mild headache.  Today, Septemberr 26th,  Kyprolis day 2.  Then my appointment with Dr. Sarriera.

First in came his intern which we have meet with before.  He went through some questions that we had so he could talk to Dr. Sarriera before he came in.  Sort of like Abbey does at times.  We reviewed my labs.  He explained until my M-spike returns to 0.0 and my monoclonal immunoglobulin (the IgG light chain) hits the negative range, Myeloma is still there but very minute.  Few more questions and he went to get Dr. Sarriera.  Tried to have him talk to Dr. Sarriera to take me off those humongous potassium pills.  No go!

Dr. Sarriera was happy with my labs even with the M-spike at 0.1.  What we are waiting on is the results of my Pet Scan.  Praying the mass beside my spine is gone and nothing else shows up.  That will be scheduled before my next appointment with him on the 24th of October.  Hospital will call me to make an appointment.  Will continue with my every other week of Darzalex through the end of October.  Also, the twice weekly Kyprolis treatments.  These appointments are already scheduled.  Once I have my appointment with Dr. Sarriera on the 24th, he will schedule my November appointments.  Providing positive results from my Pet Scan, my schedule with be as follows:  Darzalex once a month.  Kyprolis will continue to be 2 times a week for 3 weeks and one week off for another 6 months (6 cycles).  Then hopefully, we will go to once a week with the Kyprolis for 3 weeks and one week off.  Also, mentioned that he may be able to take me off Dex as well.  Started having some pains in my legs when rubbing them.  Feels like they are bruised in certain spots.  Worried me.  Dr. Sarriera assured me that it was nothing to do with Myeloma but feels it's neuropathy related.  Yeah, neuropathy.  Told him we decided to use some essential oils for the neuropathy.  He was okay with that decision.  Still will take the Lyrica too.   Dr. Sarriera told us to stay possible and again was happy where I am.

Bill and I are happy with the appointment today but have been at this point before and been slapped down.  So we will pray for good results from the Pet scan.  Waiting is the hardest but Dr. Sarriera wants to have as many treatments of Darzalex and Kyprolis as possible before it is scheduled.  So wait we must.  Pray we must.  Hope we must.

Today was a very sad day for our friends Gery and Michelle.  They had to put down their 14 year old dog Murphy.  He was Gery's constant companion.  He was having some problems this morning and Gery took him to the vet not expecting to leave without him.  His liver was very enlarged and pushing on other organs.  Nothing they could do except medicate him to keep him comfortable.  Not a way of life Gery or Michelle wanted for Murphy.  Gery made the right decision.  Bill and I will miss him too.  Especially Bill.  He was Bill's dog that lived across the street.  Barked when he saw Bill's head above our wall.  Got all excited when he saw Bill coming across the street to visit.  So Murphy, we will miss you but know that you have crossed the rainbow bridge and no longer in pain.

Quote:

Let your faith be bigger than your fear.