Big

Probably a long one.

First we have really been blessed with this beautiful dog.  I know some of you aren't dog persons, not sure how you can't be.  But that's okay.  We named her Leeta. Sasha was my name helper.  Her name at the foster's house was Lolita.  We took her on a 7 day trial November 8th and still have her.  Leeta has ben great for Bill even waking him up some days at 6. They walk each morning.  Been cold here. Cold for us in the AM. Bill said he is going to look for some gloves.  Holding the leash attached to her is cold.  Again, what a joy even though Bill's singing to her can be annoying at times.  He used to sing to Tommy too.

Deb, my sister Deb.  There are days I miss her loving, caring ways with me.  Not to help shower, (we have stories of that :0 ), not to help me with my left arm dangling (no longer does), not to help me with walking(I may walk funny but I can walk), not to help me get to the bath room (no problems there), to sleep on a lounge chair for days, not to help me dress(got that down).  But patiently sat with me when I tired to remember passwords, fixed my hair, and let me complain and bite her tongue, remembered my therapy exercises for me.   Just those little things that are really big things to us.  Just miss her at times.  So glad I had Bill to pick up where she left off.  He, of course, is my main rock.  Always there for a suggestion, to encourage me through something, listen to my thoughts and love me through all the hoopla we are going through right now.

I started my new plan on December 30th.  So was able to enjoy New Years Eve as didn't have any side effects yet.  Some of you mention that it looked like I was having a good time and this is why.  Side effects started on the 1st of January.

I am to take 8 mg of Dex on day1 when I take my Selinexinor.  That is 80 mg. This was started December 30.  Jan 1st dose number 2.  Several days of fatigue causing me to be in bed most of the day.  Waves of nausea when I was up.  Dr. Sarriera prescribed Zofran for that.  This comes with its own set of side effects.  I have also been taking Digize oil for the nausea.  And putting ginger oil in my tea.  I do exercises as I can.  Walk around pool or around my house going from kitchen, hallway, living room, dining room, back to kitchen.  Not a lot but if I can do it, I do it.  Jamie would be proud of my 25 laps.  At one time, one lap in the house was a struggle.  Trying to eat 5 or 6 small meals a day instead of large ones.

Week 2
January 6th.  Had a decent day today.  Haven't taken anything since last Wednesday.  Struggled through Thursday and the weekend with the nausea and fatigue.  I even missed Ellie's birthday dinner.  :(
Took my Dex at 11
Selinexnor at 4.
Dex it working like it used to. Not tired yet.  Making me bitchy too.  Look out.  Wait, there is no one here to lash out to.  Bill is in bed.  Leeta sound to sleep on the couch in the family room.  Neighbors all in bed too.  WAKE UP Michelle.  Need to vent.  Just kidding.  Okay stopping this.

Soon my sister, Matt, Connie and Madeleine will be here.  As well as my brother, Leslie, Marcy and Aubrey.  So excited.  Also will be seeing Mark and Irene.  Mitzi and Greg too.  Sandy and Denny are flying down for several weeks also.  All for Ellie's Bat Mitzvah.  Did I say how excited I am?  Hoping by then I have whipped some of these side effects.

My next appointment with Dr. Sarriera is January 15th.  Will do CBC and CMP labs one hour before.

When we went for a visit to see Lolita we learned at time she had been dropped off at a shelter.  Don't know why. Poodle and Pooch rescued her.   She immediately made up to Bill.  Oh, he had treats in his pocket.  Anyway, when she was dropped off, her name was Big Sexy.  What?

Quote:

Since diagnosed with cancer, every day is a bonus.