Tucker.
Yesterday, October 30th, was my final every two weeks of Darzalex. Starts once a month in November. Still have to have the Kyprolis chemo drip twice a week for 3 weeks and then one week off. My 13 days of no drugs but Dex. 13 days to start to feel better and then, here we go again. At least I won't be doing the Darzalex so much. Today, October 31st (happy anniversary Sandy and Denny), I had my Kyprolis chemo drip and my Zometa ( that's once every 3 months for bone strength). Of course, my Dex was on the hyper side today so I dressed as a gypsy and we went over to Michelle and Gery's for chicken dinner and to help hand out candy. We had a whooping 8 kids. Filled their bags full of candy. The company was great though.
My side effects this time was a little more than has been in the past with my Darzalex. Had those shooting pains from the middle of my forehead (fourth head according to Kerri) down to behind my left eye. And at times, below my left eye. Seem like sinus areas maybe. I did report it to my oncology nurse today. Have been using some of my stress relief oil in those areas. Also, have a rash, as usual, but seemed to be a lot brighter. And of course, my Dex had me up until 12:30 last night and awake again at 6:45. I think I may crash here soon but don't really feel tired yet. Tomorrow I hope to have a stay at home day. I know Friday will be one. Then dimes and dinner at the Domer's. They are here for 3 weeks this time. So glad!!!!
Since Gery and Michelle had to put Murphy down, there was an emptiness in their home. And especially for Gery. Murphy was his buddy. Well, need I say, they found another love. Rescue puppy. Beautiful black lab, Brittney spaniel mix according to the vet. Meet Tucker. He is a real sweetheart and after a few days, fit right into their family. And of course, Bill once again has a dog to help spoil. Welcome to the neighborhood Tucker.
Quote:
Being a caregiver to a spouse with cancer is like getting on a long roller coaster ride.
Wednesday, October 31, 2018
Wednesday, October 24, 2018
Huskies.
Last week I had my treatment of Darzalex on Tuesday, October 16th along with my Kyprolis drip. Wednesday, October 17th was my Kyprolis drip. Had Myeloma labs drawn on the 16th. Then on October 18th, I had my Pet Scan done. Not that I remember a lot of it. Slept through it and slept most of the day away once home. Gotta love Ativan. This week was only my Kyprolis. Yesterday, October 23rd and again today, October 24th. Both treatments went smoothly. Yesterday's a bit longer because of labs needed to check my platelets and bilirubin. Bilirubin was a bit high but not high enough to contact Dr. Sarriera for approval to administer my chemo. Today, no labs needed.
Also, today, October 24th was our appointment with Dr. Sarriera to review the results of my Pet Scan and Myeloma labs. Labs all good. M-spike is 0.1 and my light chains are up and down (but he said normal for me). Then we discussed my Pet Scan that I had last Thursday, October 18th. There is no new Myeloma from the top of my head to the bottom of my feet. Lesions that were seen are all inactive. Wonderful. Great. But as always, there is a however. But not a huge however. One that Bill and I are accepting as not a major downer. The soft tissue by my thoracic spine that was discovered several months ago to be Myeloma, has not fully disappeared. It's being attacked and is shrinking with my treatments but more treatments needed to dissipate this small mass of soft tissue. It is now very minute in size according to Dr. Sarriera. I was a little disappointed because I wanted him to say it was gone. But is really good to hear my treatments are working. We will take this and will have happy holidays this year.
I will continue to have the Kyprolis twice a week for 3 weeks on and one week off. He said this will be for a year and then maybe once a week for 3 weeks on and one week off. Darzalex will be once a month forever. We will repeat the Pet Scan in six months. And I will see him at the end of November. Bill asked again about the Dex. Dr. Sarriera asked if it was bothersome. Bill replied that its not for her but for him. We got a good laugh about that. Dr. Sarriera explained that Dex is a big part of the treatments for Myeloma. We will leave as is. We had cut the dosage down several weeks ago.
All and all this is good news and Dr. Sarriera is happy with what he is seeing. I know Bill is too and I am trying to also. Takes me longer to accept things as I deal with this in my mind every day. Try not to but it's not easy not to. Just want to be done. 2 1/2 years. Just want to be done. Will be 2 years November 14th that I had my transplant. Just want to be done. Oh, did I tell you that I am on Dex and my emotions are showing. :0
Bill and I have been watching Kristopher's home football games live on You Tube on Friday nights. We pulled his game up last Friday on You Tube and settled in for a fun night watching our grandson play football in Colorado from our seats in Florida. Watched the whole game with texting Kerri. Bill made a remark that the band was playing the same songs as the week before. Then they pulled the winning ticket for the 50/50 drawing, same name and number as the week before. We remarked on that. Then the announcer did a shout out to Bill and I watching our grandson Kristopher Aguirre playing football from our home in Florida. Same as he did the week before. Kerri text asking if we saw that play or that play. We did. At the end of the game, I text her saying that it was a great game and the score was the same as the week before, 42 - 7. Okay, you all know where this is going. She text - huh, the score was 12-7. Well, we were actually watching the previous weeks game again. Duh. We all got a good laugh about that. Bill and I did watch the replay on You Tube of the right game the next day. Go Huskies.
Quote:
Every day I challenge this cancer and survive is a victory for me.
Last week I had my treatment of Darzalex on Tuesday, October 16th along with my Kyprolis drip. Wednesday, October 17th was my Kyprolis drip. Had Myeloma labs drawn on the 16th. Then on October 18th, I had my Pet Scan done. Not that I remember a lot of it. Slept through it and slept most of the day away once home. Gotta love Ativan. This week was only my Kyprolis. Yesterday, October 23rd and again today, October 24th. Both treatments went smoothly. Yesterday's a bit longer because of labs needed to check my platelets and bilirubin. Bilirubin was a bit high but not high enough to contact Dr. Sarriera for approval to administer my chemo. Today, no labs needed.
Also, today, October 24th was our appointment with Dr. Sarriera to review the results of my Pet Scan and Myeloma labs. Labs all good. M-spike is 0.1 and my light chains are up and down (but he said normal for me). Then we discussed my Pet Scan that I had last Thursday, October 18th. There is no new Myeloma from the top of my head to the bottom of my feet. Lesions that were seen are all inactive. Wonderful. Great. But as always, there is a however. But not a huge however. One that Bill and I are accepting as not a major downer. The soft tissue by my thoracic spine that was discovered several months ago to be Myeloma, has not fully disappeared. It's being attacked and is shrinking with my treatments but more treatments needed to dissipate this small mass of soft tissue. It is now very minute in size according to Dr. Sarriera. I was a little disappointed because I wanted him to say it was gone. But is really good to hear my treatments are working. We will take this and will have happy holidays this year.
I will continue to have the Kyprolis twice a week for 3 weeks on and one week off. He said this will be for a year and then maybe once a week for 3 weeks on and one week off. Darzalex will be once a month forever. We will repeat the Pet Scan in six months. And I will see him at the end of November. Bill asked again about the Dex. Dr. Sarriera asked if it was bothersome. Bill replied that its not for her but for him. We got a good laugh about that. Dr. Sarriera explained that Dex is a big part of the treatments for Myeloma. We will leave as is. We had cut the dosage down several weeks ago.
All and all this is good news and Dr. Sarriera is happy with what he is seeing. I know Bill is too and I am trying to also. Takes me longer to accept things as I deal with this in my mind every day. Try not to but it's not easy not to. Just want to be done. 2 1/2 years. Just want to be done. Will be 2 years November 14th that I had my transplant. Just want to be done. Oh, did I tell you that I am on Dex and my emotions are showing. :0
Bill and I have been watching Kristopher's home football games live on You Tube on Friday nights. We pulled his game up last Friday on You Tube and settled in for a fun night watching our grandson play football in Colorado from our seats in Florida. Watched the whole game with texting Kerri. Bill made a remark that the band was playing the same songs as the week before. Then they pulled the winning ticket for the 50/50 drawing, same name and number as the week before. We remarked on that. Then the announcer did a shout out to Bill and I watching our grandson Kristopher Aguirre playing football from our home in Florida. Same as he did the week before. Kerri text asking if we saw that play or that play. We did. At the end of the game, I text her saying that it was a great game and the score was the same as the week before, 42 - 7. Okay, you all know where this is going. She text - huh, the score was 12-7. Well, we were actually watching the previous weeks game again. Duh. We all got a good laugh about that. Bill and I did watch the replay on You Tube of the right game the next day. Go Huskies.
Quote:
Every day I challenge this cancer and survive is a victory for me.
Sunday, October 14, 2018
Damn.
Made a few changes to my last post. I had all the dates for October instead of September. Duh.
We have been on a 10 day of 12 vacation of no chemo or Dex (I decided not to take the Dex on my own). Nothing except my Lyrica, Acyclovir, blood pressure/water pill and vitamins. What a relief for me and Bill. It will all start all over again Tuesday.
During this time of no drugs, Bill and I took a mini vacation. Off to St. Augustine for 3 days. Much needed vacation for both of us. A get away from our lives of pills, chemo, trips to the Cancer Center, my side effects of headaches, rashes, fatigue, just not feeling good.
What a great time we had despite the rain. The dates we reserved several weeks ago were the days that Michael (hurricane) decided to hit the FL panhandle and move on to several other states. We were very lucky in our area to only have rain. We pray for those that lost their homes and the ones that lost their lives. Bill and I put "cancer" out of our minds and really enjoyed our stay. We really want to go back to St. Augustine. Beautiful place and full of history.
During my last treatment, we had a visitor. Desiree. She came to my treatment room to tell us that she will no longer be Dr. Sarriera's nurse. What??? No!!! She is taking on a new position that involves being a patient's advocate. Phew!! I thought she was going to tell us she was leaving the Cancer Center. Will be in the same office area so will still get a chance to see her occasionally. Everyone knows how I feel about Desiree. Will miss her. :( It was so "her" coming to tell us in person. So Desiree!
Tuesday, October 16th, will be my Darzalex treatment along with Kyprolis and Dex. Wednesday, October 17th, Kyprolis treatment. Thursday, October 18th, Pet Scan. Much waited on Pet Scan. This will be a full body scan to make sure no Myeloma is lurking around. Plus, to make sure my meds have dissipated the mass that was found near my spine. Very important Pet Scan. My appointment will Dr. Sarriera isn't until October 24th. Once the results are in my Cancer Center portal, I will call Dr. Sarriera to review the results. Asking for lots of prays that this scan shows nothing!!!
One of the things I wanted to do while in St. Augustine was go to the Scarlett O'Hara's restaurant. Gone With the Wind is my all time favorite movie. I am not sure how many times I have watched it. I even dressed as Scarlett for Halloween one year. So we went and were not disappointed. Food was great and the decor of pictures, signs, paintings depicting Scarlett and Rhett was awesome. Favorite were the signs for the restaurant; Scarlett O'Hara's - Frankly, I don't give a damn.
Quote:
Use the bricks that are thrown at you to build a strong foundation.
Made a few changes to my last post. I had all the dates for October instead of September. Duh.
We have been on a 10 day of 12 vacation of no chemo or Dex (I decided not to take the Dex on my own). Nothing except my Lyrica, Acyclovir, blood pressure/water pill and vitamins. What a relief for me and Bill. It will all start all over again Tuesday.
During this time of no drugs, Bill and I took a mini vacation. Off to St. Augustine for 3 days. Much needed vacation for both of us. A get away from our lives of pills, chemo, trips to the Cancer Center, my side effects of headaches, rashes, fatigue, just not feeling good.
What a great time we had despite the rain. The dates we reserved several weeks ago were the days that Michael (hurricane) decided to hit the FL panhandle and move on to several other states. We were very lucky in our area to only have rain. We pray for those that lost their homes and the ones that lost their lives. Bill and I put "cancer" out of our minds and really enjoyed our stay. We really want to go back to St. Augustine. Beautiful place and full of history.
During my last treatment, we had a visitor. Desiree. She came to my treatment room to tell us that she will no longer be Dr. Sarriera's nurse. What??? No!!! She is taking on a new position that involves being a patient's advocate. Phew!! I thought she was going to tell us she was leaving the Cancer Center. Will be in the same office area so will still get a chance to see her occasionally. Everyone knows how I feel about Desiree. Will miss her. :( It was so "her" coming to tell us in person. So Desiree!
Tuesday, October 16th, will be my Darzalex treatment along with Kyprolis and Dex. Wednesday, October 17th, Kyprolis treatment. Thursday, October 18th, Pet Scan. Much waited on Pet Scan. This will be a full body scan to make sure no Myeloma is lurking around. Plus, to make sure my meds have dissipated the mass that was found near my spine. Very important Pet Scan. My appointment will Dr. Sarriera isn't until October 24th. Once the results are in my Cancer Center portal, I will call Dr. Sarriera to review the results. Asking for lots of prays that this scan shows nothing!!!
One of the things I wanted to do while in St. Augustine was go to the Scarlett O'Hara's restaurant. Gone With the Wind is my all time favorite movie. I am not sure how many times I have watched it. I even dressed as Scarlett for Halloween one year. So we went and were not disappointed. Food was great and the decor of pictures, signs, paintings depicting Scarlett and Rhett was awesome. Favorite were the signs for the restaurant; Scarlett O'Hara's - Frankly, I don't give a damn.
Quote:
Use the bricks that are thrown at you to build a strong foundation.
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