70

Good day Monday.  Tuesday, March 19th not such a good day.  Woke up fine but around 9 got that pain in my right abdomen.  Continued to worsen as the morning went along.  My chemo treatment of Kyprolis was scheduled for 12:30.  Laying and sitting help the pain subside.  Used my tummy tamer oil mixture.  Finally got a shower and ready to go.  Left here around 11:30 and got to the Cancer Center around 12.  WOW.  Spring break for the kids so traffic was light and it was raining.  Made it through the treatment without the pain.  Talk to my oncology nurse about it.

We left there and wanted to stop at Publix for a few things.  Till I was done getting what we wanted, the pain was back.  This pain kept up all day off and on until 10 that night.  I contacted Dr. Sarriera's office to request the Pet Scan be read again concentrating on the right side.  Dr. Sarriera is on vacation until Friday.  Abby is in but very busy covering for Dr. Sarriera so I didn't hear from her.  Did discuss with Ana their oncology nurse.  She had me take a pain pill.  Plus, my Dex helped with the inflammation.  This pain usually goes away in about 1/2 hour if I sit or lay down.  And stays away.  But this attack like yesterdays, hit me again right before Bob and Louise visited.  Lasted 1/2 day.  Then several times again but the minor attack.

What is this?  Is it gall bladder, diverticulitis, my appendix (if I still have them), gall stones, kidney stones????   I have had MRi"s, Catscan's, Sonigrams off and on for years.  This pain started several years ago in PA.  Nothing ever shows up. And it's getting worse.   All I know is I am afraid it's going to happen again.  Hoping my doctor's figure something out.  I will be emailing them again tomorrow.

Today the pain wasn't there.  But if I press on the area where it was yesterday, it's sore feeling.  So frustrating.  Today I had my normal morning headache from the chemo treatment yesterday.  And, of course, my rash from the Dex.  Headache gone once up a bit.  Rash is ruby red tonight but will fade the next few days.  Just need the fatigue to go away before my brother gets here.  If not, he will understand.  

Sandy and Denny left today.  They were here for 5 weeks.  Didn't see much of them as they had visitors 3 of the 5.  Good for them.  Got to see her Dad and Ann, John and Deb and Brian and Andrea for a bit.

My brother and Leslie come Friday night and will be here till Monday.  Will be great to see them.  Nothing planned but to enjoy their company.  Of course, mom says he has to take her to dinner somewhere.

One more week of my one day Kyprolis treatment next week then I will be off for a week.  Yeah.  Hope I feel better then I did the last one I had off.  My body is still getting used to this treatment plan. Darzalex and Dex the same but Kyprolis is less.   Forever!!!  Or until they find a cure for Multiple Myeloma.  Getting closer and closer they say.  Pray this is right.  Need a cure.  Need a break from chemo, Dex, Darzalex.  I know this Neuropathy will always be a part of me but maybe not as bad if I am not on chemo meds.  Need a cure!!!  March is Multiple Myeloma month.  Wear burgundy.

Bill brought our mail in the other day and said he thought he was called for jury duty.  Then he said the letter said happy birthday too.  May be a scam letter?   Read it further and it stated that he no longer would be called for jury duty because he was about to turn 70 if he wanted to opt out.  Of course he opted out and sent the signed and dated letter back.  Another good reason to move to Florida or do other states do this?  I thought 70 was the speed people drive in Florida in a 45 speed limit area.  Ha!

Quote:

For HOPE, SUPPORT and a CURE,  I wear burgundy for Multiple Myeloma.