My car is burgundy!

Wow.  Did I sleep last night or was I dreaming?   Went to bed around 11:30, slept till 1:30, up about 10 minutes and back to sleep till 5:30 this morning.  Been up most of the day except for about 2 1/2 hour naps.  Now almost 10.  Not a lot of foot pain at first this morning.  Built up as day went on.  Hands still tingly and itchy.  A little rash from the chemo pills from yesterday.  No big deal.  Steroids have me very "bitchy", weepy and touchy.  Just ask Bill.  Sorry.  Hope I can sleep again tonight.  Bill ordered me some cream that is to be good for neuropathy called Wise Men.  Will be trying it out tonight.  Will give you an update tomorrow.

Picked up Sandy and Denny at their condo so they could see mom's place when we picked her up.  Then to Publix and back home.  Then out to finish celebrating our anniversary at BJ's Brew House with mom, Sandy, Denny, Michelle and Gery.  Great time.  Watching hurricane Matthew closely.  Our son-in-law and nephew mixed up in one.

The color for Multiple Myeloma is burgundy.  Ironically my car is burgundy.  Just thought I would point that out.

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Wear burgundy for someone you need in your life!

Chemo pills and steroid pills take ##!

Same ole night like the previous nights.  Does ceramic tile show a pattern of where you walked like carpet does?   I have a walking pattern that I go each night to relieve my pain.  Funny how walking eases it.  Swing those arms, lift those arms, shake those hands, 7, 6, 5, 4, 3, 2, 1!   Come on, count with me.  My little ritual several times each night to ease pain.  Then lay down in bed. Nope.  Not working.  Sit in lounge chair with recliner back.   Only way I can get a little sleep.  Then up, 7, 6, 5, 4, 3, 2, 1.  Again.  Desiree said it should start easing soon.  Soon would be now.  Maybe I can get her to walk with me.  

Velcade done per Dr. Sariera till (?) but it's my Friday 22 pill day to include 10 steroids and 7 chemo pills (cyclophosphamide or as I call them, Cyclope pills).  I continue on this Friday schedule until the 14th of October.  Will the steroids keep me up tonight or tomorrow or when?   It's already 10:30.  

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I'm doing the dance called life!

Happy Anniversary!

Was up all night but about 3 hours last night.   The pain was excruciating and nothing eased it.   Couldn't lay in bed, couldn't sit straight up, just walked the floors.  Feet, legs, hands and arms.  Finally emailed Desiree around 1:30 AM to talk to Dr. Scarriera as soon as she could once they got in to see what we could do about this.  Needed rest, needed rid of some pain, needed to relax, needed to be me.  If Velcade injections are causing this, what can be done to stop the neuropathy?  Desiree is so good.  Got an email back saying Velcade injections to be stopped immediately per Dr. Sarriera!  Music to my ears.  Continue to take my 7 chemo pills and 10 steroids on Fridays though.  Not sure how long the neuropathy will take ease up and disappear but knowing this is in site sure will help.  Figure didn't start overnight so probably won't go away overnight.  But just go away please!

Sandy and I did a little shopping this morning.  Not like we used to shop.  Then we went to Thai Basil for an anniversary celebration tonight with Sandy and Denny.  Nice to have them here.

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No matter how dark the night, it must be followed by dawn!

Will this week end?

Last nights sleep was okay.  Was awake by 5:30 and had to get up to walk off the foot pain.  Hands and arms are still really achy, painful, numb.  I am now taking 2 Gabapentine a day.  Working up to 3.   Did email Desiree my symptoms.  Said she would talk to Dr. Sarriera tomorrow.  Let me sleep tonight.

Nice dinner with Sandy and Denny to end the day.  So love they are here but feel bad it's a horrible week for me.  Next year this time!!!

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You won't be the person you were before cancer but that's not a bad thing!

Got this card in the mail the other day from a sweet little boy.  I know he enjoyed making it as much as I enjoyed getting it.  Thanks Zachary!!!  xo

Northerners are here!

Was able to sleep last night all night.  About 10:30 till 8:30 this morning (just a few bathroom interruptions). Thinking maybe the Gabapentine helped.  This morning, I had just some miner pain in my feet.  Hands still painful but not as bad as yesterday.  Did a little running around with Bill for a bit.  Still get tired really quick.  But that is a side effect of each of my meds so makes sense.  Nap did me good.

Then we got company.  Some northerners.   Sandy and Denny are in town.  Yeah!!!   They came in yesterday. We couldn't pick them up at airport so they got to experience Uber!   Got to see my not a good day day.  Hoping now we can make some plans together as long as these pills keep working on my neuropathy.  I know I am no fun to be around when I am having one of my bad days.  But I think Sandy can handle it.  Nice to have her with me for a few days.   She is full of hugs from home!  

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Cancer takes away my some of my physical abilities but it can't touch my mind and my soul!

Just like the song!

Did get some sleep last night but was up off and on with the nagging, tingling, aching, painful feet, hands and arms.  Especially the hands.  Finger tips are so numb and some feel like they are bruised.  Finally at 5:30 this morning I emailed Desiree and told her to order the prescription for Gabapentin she told me about several days ago.  And the fatigue today was awful.  Just no energy.  Just couldn't stay on top of the day.  Had my Velcade shot around 1.  Been dozing off and on all day but can't fall in to a nice sleep.   Finally took the Gabapentin for the neuropathy. Sure hope it kicks in because I am not liking the way I feel today at all.  I would put this day up there as the worse!!  And as the song goes - I had a bad day!!!

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You have to fight through the bad days to earn the best days of your life!