Relay for Life
Still getting a mild rash with the Revlimid. Doing the every other day taking of the pill. Rash is very sporadic where is chooses to be. Right now I have some on my head, around my ears and by my right temple. A few days ago it was on my lower back and my stomach. Not sure just what
Dr. Sarriera will do. Just have to wait and see.
I do feel pretty good. My news last week has help tremendously. I am dealing with the "dizziness" from the meds and the neuropathy. But there are days, I just don't feel like dealing with it and I am entitled not too. Just need to hear Dr. Sarriera say that I am in remission at my next appointment. I think once I hear that, I will be able to put the fact that Myeloma will come back eventually, further back in my mind. And I can't beat myself up for thinking that as it hasn't even been a year since I was diagnosed. And hasn't been but 5 months since I had my transplant. So if sometimes I don't seem happy about the good test results, that's okay. Because life with cancer has a way of altering your way of thinking. Life with cancer has a way of affecting your emotions.
I went to the dentist this past week because I was having some pain in my top tooth in the back. I thought for sure it was fractured. Had an X-ray and examine. Dentist said it wasn't fractured or infected. Thinks it just my sinus problems causing the pain because it's not consistent. That was more good news. Thought I would be going through a root canal, crown and all that goes with that.
The years I walked for Relay for Life, I never thought I would some day hope the World Kitchen walkers would have me in their thoughts and prayers as they walk the track at Greencastle High School. A track I walked for my dad, my friend Donna, my friend Louise, my brother-in-law John, my friend Deb's brother and many others over the years. I never thought I would be a victim too. I never thought the money I raised as a walker, the money I spent on the raffles however minute, the money raised by World Kitchen would maybe someday be used towards finding a cure for cancer, a cure for Multiple Myeloma. I will be looking for an event near here. I know there is a picnic in June sponsored by Relay for Life that I am hoping Bill and I will be able to attend. Hoping maybe Kristi, Matt and the girls can go as well.
Quote:
The mind keeps thinking you have had enough but the heart keeps telling you don't give up.
Sunday, April 23, 2017
Wednesday, April 19, 2017
1/2 off
Lots of things to post about tonight so hold on. Will probably be one of my lengthy posts. But will help me remember things a year from now, two years from now, 10 years from now and 20+ years from now.
Monday I had an appointment with our new family doctor, Dr. Tonya Young-Henley. This is my third appointment with her. Bill and I are both very happy with her, her office, her staff and the caring they all present. This was an appointment to go over my recent blood work she requested and to discuss any problems, concerns etc with her. First, the blood work she requested was added to my labs for Dr. Sarriera. This way I didn't have to have blood drawn twice. However, I was to fast for her requests and I didn't. OOPS. I have never fast for any of the thousands of labs I have had over the past 8-9 months so didn't even think about it. But, get this, Dr. Henley was happy with the numbers even though I didn't fast. Cholesterol was one of the main concerns and it was good. We then discussed the pain in my left arm that's mostly in the muscle area. She is ordering X-rays.
My blood pressure was 96/60. She was very concerned about this and decided to give me an EKG. That turned out okay. Only thing detected was one of my heart's four chambers was enlarged. Wants to check my EKG from Moffitt to see if this was mentioned. I was able to get on to my portal for Moffitt and pulled up the EKG information and it was noted there. So it wasn't anything new. I personally think that is the chamber that holds my love for my husband, daughters and their spouses and my grandkids!!! Has to be. Dr. Henley is working on getting my immunizations ready for next month. Time for my post transplant 6 month shots. She discussed my "foggy" head as I call it. Suggested more fluids. All in all was a good visit.
I was to email Desiree and get the Myeloma results from my lab work yesterday, Tuesday. I emailed and she checked with Abby. My email back was labs great. M spike 0. Back I went and asked what that meant. Email back to me was positive immunofixation. Huh? I emailed back again and said I was hoping for more details. Email back to me that Abby would call tomorrow (today). Well, my day didn't start off so good. Emotions running high again. So this was all I needed to bring on the tears and fears. Tried to hide it from Bill but he knows me well. Ruined the rest of the night for both of us. Boy, when those tears start, they have trouble stopping.
This morning went to visit mom. She didn't look so good. Just had physical therapy so I think she was very tired. Spent about 1 1/2 hours with her. Still waiting on the phone call from Abby.
Finally around 3:30 Abby called. She started by saying she was so happy with my lab test results. Asking me then what questions I had? Okay, explain what the M spike at 0 means to us. And where do I see this number on my lab reports (I have a portal and can view my results). This shows up on the report as Para Protein (who knew?). Well, I guess I sort of did because I got on the Internet and look up stuff after I calmed myself down yesterday. Anyway, the 0 means there wasn't any measurable Myeloma cells. This M Spike number and the value of the Kappa/Lambda light chains (the activity of Myeloma cell growth is linked to the amount of light chains in the blood) together are used to determine the measurable Myeloma cells. My Kappa/Lambda light chains value was 1.11 which is in the normal range. Thus, no measurable Myeloma cells. We know Myeloma cells are there but at this time, they are NOT measurable!!! Happy, happy. I asked her what the she meant yesterday by positive immunofixation (Igs antibodies. Too much of the same Ig is usually due to blood cancers). Again, she stated there wasn't a value for this, meaning no measurable Myeloma cells. So from what I gather, even though I know they are in there and always will be, right now there are no measurable Myeloma cells. This is great news. I am very happy with this milestone for me even though I know it will come back some day. That will stick in my mind forever but as each day goes on, I am sure it will be buried deeper and deeper. All this is just too fresh to not worry about that part of my life with Myeloma. And as you all would expect from me, I asked Abby if this meant I was in REMISSION. She said there is "very good partial remission" and "complete remission". She feels that I am in between the two but wants to confirm this with Dr. Sarriera. I will take this answer for now as it's heading towards what I want to hear. Again, I am very happy about this news but still have some anxiety about the future.
Abby mentioned they added the IgE test to be done at the next blood draw. This is the test that Dr. Ochoa used to measure the Myeloma cells. I wanted this done just to compare with his findings.
Talked to her about my light headiness (called by me as foggy head). She said more fluids (adding her fluids and Dr. Henley's fluids, I should be floating) and regular meals with snacks in between. Need to get some healthy snacks as I don't think she means cookies and candy!!!???
Great phone call with the information I was looking for and needed to hear. Not wishy, washy emails especially on one of my emotional days. Go back in three weeks for a check up on my Revlimid rash or no rash. Just a mild one here and there. So maybe it will be every other day for my maintenance
program. Will see. Sounded like they would try me once again on every day later.
Ended my happy news day going for a root beer gelati with Michelle. Jeremiah's was celebrating spring fling days with 1/2 off all sizes of gelatis. Michelle and I frequent this place 2 or 3 times a week. I don't think I can add this to my list of fluids and snacks my doctors were talking about, do you?
Quote:
A strong person is not one who does not cry. A strong person is one who cries and sheds tears for a moment, then gets up and fights again.
Lots of things to post about tonight so hold on. Will probably be one of my lengthy posts. But will help me remember things a year from now, two years from now, 10 years from now and 20+ years from now.
Monday I had an appointment with our new family doctor, Dr. Tonya Young-Henley. This is my third appointment with her. Bill and I are both very happy with her, her office, her staff and the caring they all present. This was an appointment to go over my recent blood work she requested and to discuss any problems, concerns etc with her. First, the blood work she requested was added to my labs for Dr. Sarriera. This way I didn't have to have blood drawn twice. However, I was to fast for her requests and I didn't. OOPS. I have never fast for any of the thousands of labs I have had over the past 8-9 months so didn't even think about it. But, get this, Dr. Henley was happy with the numbers even though I didn't fast. Cholesterol was one of the main concerns and it was good. We then discussed the pain in my left arm that's mostly in the muscle area. She is ordering X-rays.
My blood pressure was 96/60. She was very concerned about this and decided to give me an EKG. That turned out okay. Only thing detected was one of my heart's four chambers was enlarged. Wants to check my EKG from Moffitt to see if this was mentioned. I was able to get on to my portal for Moffitt and pulled up the EKG information and it was noted there. So it wasn't anything new. I personally think that is the chamber that holds my love for my husband, daughters and their spouses and my grandkids!!! Has to be. Dr. Henley is working on getting my immunizations ready for next month. Time for my post transplant 6 month shots. She discussed my "foggy" head as I call it. Suggested more fluids. All in all was a good visit.
I was to email Desiree and get the Myeloma results from my lab work yesterday, Tuesday. I emailed and she checked with Abby. My email back was labs great. M spike 0. Back I went and asked what that meant. Email back to me was positive immunofixation. Huh? I emailed back again and said I was hoping for more details. Email back to me that Abby would call tomorrow (today). Well, my day didn't start off so good. Emotions running high again. So this was all I needed to bring on the tears and fears. Tried to hide it from Bill but he knows me well. Ruined the rest of the night for both of us. Boy, when those tears start, they have trouble stopping.
This morning went to visit mom. She didn't look so good. Just had physical therapy so I think she was very tired. Spent about 1 1/2 hours with her. Still waiting on the phone call from Abby.
Finally around 3:30 Abby called. She started by saying she was so happy with my lab test results. Asking me then what questions I had? Okay, explain what the M spike at 0 means to us. And where do I see this number on my lab reports (I have a portal and can view my results). This shows up on the report as Para Protein (who knew?). Well, I guess I sort of did because I got on the Internet and look up stuff after I calmed myself down yesterday. Anyway, the 0 means there wasn't any measurable Myeloma cells. This M Spike number and the value of the Kappa/Lambda light chains (the activity of Myeloma cell growth is linked to the amount of light chains in the blood) together are used to determine the measurable Myeloma cells. My Kappa/Lambda light chains value was 1.11 which is in the normal range. Thus, no measurable Myeloma cells. We know Myeloma cells are there but at this time, they are NOT measurable!!! Happy, happy. I asked her what the she meant yesterday by positive immunofixation (Igs antibodies. Too much of the same Ig is usually due to blood cancers). Again, she stated there wasn't a value for this, meaning no measurable Myeloma cells. So from what I gather, even though I know they are in there and always will be, right now there are no measurable Myeloma cells. This is great news. I am very happy with this milestone for me even though I know it will come back some day. That will stick in my mind forever but as each day goes on, I am sure it will be buried deeper and deeper. All this is just too fresh to not worry about that part of my life with Myeloma. And as you all would expect from me, I asked Abby if this meant I was in REMISSION. She said there is "very good partial remission" and "complete remission". She feels that I am in between the two but wants to confirm this with Dr. Sarriera. I will take this answer for now as it's heading towards what I want to hear. Again, I am very happy about this news but still have some anxiety about the future.
Abby mentioned they added the IgE test to be done at the next blood draw. This is the test that Dr. Ochoa used to measure the Myeloma cells. I wanted this done just to compare with his findings.
Talked to her about my light headiness (called by me as foggy head). She said more fluids (adding her fluids and Dr. Henley's fluids, I should be floating) and regular meals with snacks in between. Need to get some healthy snacks as I don't think she means cookies and candy!!!???
Great phone call with the information I was looking for and needed to hear. Not wishy, washy emails especially on one of my emotional days. Go back in three weeks for a check up on my Revlimid rash or no rash. Just a mild one here and there. So maybe it will be every other day for my maintenance
program. Will see. Sounded like they would try me once again on every day later.
Ended my happy news day going for a root beer gelati with Michelle. Jeremiah's was celebrating spring fling days with 1/2 off all sizes of gelatis. Michelle and I frequent this place 2 or 3 times a week. I don't think I can add this to my list of fluids and snacks my doctors were talking about, do you?
Quote:
A strong person is not one who does not cry. A strong person is one who cries and sheds tears for a moment, then gets up and fights again.
Sunday, April 16, 2017
wish dream wish dream wish dream wish dream
Had a few days here that I was completely exhausted. Even took naps two days in a row. I haven't been taking naps here of late. Just don't feel I need them. Instead I am in my sewing room. But thinking my chemo pill and the time I take them may have something to do with the exhaustion. So we thought about it and I will now take them around noon or one o'clock like I was when I first started back on them. See if that helps making the tired time mostly over night.
I forgot to mention that I talked to Abbey at my appointment about dental work. I have a tooth is bothering me occasionally. Needed to see what I had to do before I went to the dentist. Cleanings, exams, fillings require nothing extra. But anything to do with the bone area, like pulling a tooth or root canal, I need to discuss with Dr. Sarriera and or Abbey. And since I just recently had my Zometa drip, I have to wait a few more weeks if any of that needs done. If the tooth is impacted or infected and needs work done on it immediately, I have to call and discuss it with them before any treatment can be done. Another thing to worry about even though I don't know what is wrong with my tooth. ;)
wish dream wish dream wish dream wish dream
This is written all over my pj pants. I bought these back in August or September last year when Kristi and I went shopping for me to get some nightgowns/pjs for my Moffitt hospital days. Turned out to be my favorite. They are a little big on me but just roll them at the waist and I don't lose them.
Quote:
When I am resting because my body is weak, I need to remember that I am not wasting the day doing nothing. I am doing exactly what I need to do, I am recovering.
Had a few days here that I was completely exhausted. Even took naps two days in a row. I haven't been taking naps here of late. Just don't feel I need them. Instead I am in my sewing room. But thinking my chemo pill and the time I take them may have something to do with the exhaustion. So we thought about it and I will now take them around noon or one o'clock like I was when I first started back on them. See if that helps making the tired time mostly over night.
I forgot to mention that I talked to Abbey at my appointment about dental work. I have a tooth is bothering me occasionally. Needed to see what I had to do before I went to the dentist. Cleanings, exams, fillings require nothing extra. But anything to do with the bone area, like pulling a tooth or root canal, I need to discuss with Dr. Sarriera and or Abbey. And since I just recently had my Zometa drip, I have to wait a few more weeks if any of that needs done. If the tooth is impacted or infected and needs work done on it immediately, I have to call and discuss it with them before any treatment can be done. Another thing to worry about even though I don't know what is wrong with my tooth. ;)
wish dream wish dream wish dream wish dream
This is written all over my pj pants. I bought these back in August or September last year when Kristi and I went shopping for me to get some nightgowns/pjs for my Moffitt hospital days. Turned out to be my favorite. They are a little big on me but just roll them at the waist and I don't lose them.
Quote:
When I am resting because my body is weak, I need to remember that I am not wasting the day doing nothing. I am doing exactly what I need to do, I am recovering.
Thursday, April 13, 2017
It's
Today was my two week follow up with Dr. Sarriera. I actually saw Abbey. We discussed my mild rash and the labs. All looks good with the labs but was disappointed because the Myeloma values will not be done until Tuesday. These are the values I wanted to see the most. Needed to see the most. Bill had mentioned earlier that he didn't think they would be ready. I had forgotten it takes a few days to complete the tests on the blood for the Myeloma values. Anyway, I will continue to take the Revlimid every other day for another 30 days. Then will be reevaluated again. Thinking this way of taking the Revlimid may be the way to desensitize me. Time will tell.
Have mentioned in past posts several of the lovely people we have met throughout my journey with Myeloma. Another one is Ashton. She is involved mostly with billings and we have talked to several times. Sweet, young lady. When she hears them call for Mrs. Snowberger and if we hadn't stuck our heads in her office to say hi, she always comes out to see us. Today, she came back from lunch just as we were waiting to check out. Talked a few minutes and she then said, "Did you see Desiree today? Did you hear her news?" No. What? I immediately said, "Is she pregnant?" Ashton just kept grinning and saying she couldn't tell me. Told us to wait and she would see if Desiree was available. Desiree came out of her office grinning and I knew. She is pregnant. Then she began to say, look how big I am. Only 12 weeks and I am huge already. She couldn't understand why. WELL, she knows why now it's twins. So happy for her and her husband. As you know, Desiree has been wonderful to us since we first started at UF Health Cancer Center. Has answered so many emails from me when I have been doubtful about things, unsure of what should be happening, has calmed me when I have been hyper about side effects of my meds. Just all around been there for me. My go to person. Wonderful person just like Ashton, Abbey, Dr. Sarriera and many more.
Tonight's quote is dedicated to my biggest support person and my caregiver. Couldn't fight this battle without Bill by my side.
Quote:
Find arms that will hold you at your weakest times, eyes that will see your beauty at your ugliest times and a heart that will love you at your worst.
Today was my two week follow up with Dr. Sarriera. I actually saw Abbey. We discussed my mild rash and the labs. All looks good with the labs but was disappointed because the Myeloma values will not be done until Tuesday. These are the values I wanted to see the most. Needed to see the most. Bill had mentioned earlier that he didn't think they would be ready. I had forgotten it takes a few days to complete the tests on the blood for the Myeloma values. Anyway, I will continue to take the Revlimid every other day for another 30 days. Then will be reevaluated again. Thinking this way of taking the Revlimid may be the way to desensitize me. Time will tell.
Have mentioned in past posts several of the lovely people we have met throughout my journey with Myeloma. Another one is Ashton. She is involved mostly with billings and we have talked to several times. Sweet, young lady. When she hears them call for Mrs. Snowberger and if we hadn't stuck our heads in her office to say hi, she always comes out to see us. Today, she came back from lunch just as we were waiting to check out. Talked a few minutes and she then said, "Did you see Desiree today? Did you hear her news?" No. What? I immediately said, "Is she pregnant?" Ashton just kept grinning and saying she couldn't tell me. Told us to wait and she would see if Desiree was available. Desiree came out of her office grinning and I knew. She is pregnant. Then she began to say, look how big I am. Only 12 weeks and I am huge already. She couldn't understand why. WELL, she knows why now it's twins. So happy for her and her husband. As you know, Desiree has been wonderful to us since we first started at UF Health Cancer Center. Has answered so many emails from me when I have been doubtful about things, unsure of what should be happening, has calmed me when I have been hyper about side effects of my meds. Just all around been there for me. My go to person. Wonderful person just like Ashton, Abbey, Dr. Sarriera and many more.
Tonight's quote is dedicated to my biggest support person and my caregiver. Couldn't fight this battle without Bill by my side.
Quote:
Find arms that will hold you at your weakest times, eyes that will see your beauty at your ugliest times and a heart that will love you at your worst.
Monday, April 10, 2017
She has hair!
So the rash continues but very mildly. Only taking the Revlimid every other day. Not sure what
Dr. Sarriera will want me to do. I have an appointment with him on Thursday. So we will see. Also, will do the Multiple Myeloma lab draw to see what my counts are now. Funny, but I do not have to fast for any of these blood tests.
We went to our Myeloma support group meeting tonight. Have not been since last September. Good to see some of the people that were there back when we were going. There were a lot of new people also. Just want to write about a few. Helps me remember.
Ken - he is the founder of this group in this area. Been 12 years since he was diagnosed. 10 years ago he had a transplant. Revlimid is his maintenance drug.
Ben - very young guy. Was diagnosed in June of last year. Has been on a program of Revlimid, Velcade and steriods since. He does not have any active Myeloma cancer cells in his bone marrow at this time. He knows that it's just a matter of time till they reappear. No plans at this time for a transplant.
Gene - probably my age. I forget when he was diagnosed. He is going through testing for his transplant. Had some labs that do not look good so not sure when he can get his transplant.
Kathie - first time to the meeting. Diagnosed early 2013 - transplant late 2013. This lady was an pediatric oncology nurse. Dealt with children with cancer. Said never did she ever think she would end up with cancer.
Everyone got a chance to tell their story and everyone listens even though some of them we had already heard at other meetings. Everyone who has had a transplant, relives their transplant while someone tells about their transplant. Everyone who is taking Revlimid or Velcade or Zometa shakes their head as someone says they are taking Revlimid or Velcade or Zometa. Everyone who has had a bone marrow biopsy relives the pain they had as someone describes their pain. Multiple Myeloma has struck us and we are there supporting each other with a smile, pat on the back, a nod, a story! A great group that I am glad to be a part of.
Last person I want to talk about is Cynthia.
Cynthia - transplant in December. Can't remember any other of her details because all I could do was stare at how much hair she had for just having a transplant in December. All I could think was - she has hair, how can she have so much hair when she just had a transplant in December - maybe she never lost it - maybe if I wouldn't have had mine shaved!!! My mind just focused on her hair and not her other details. Finally Bill said something about me worrying as to why she has hair and her transplant was so recent. He heard what she really said. It was December of 2015 not 2016. Duh me!!!
Quote:
Be strong as you never know who you are inspiring. Beautiful people do not just happen.
So the rash continues but very mildly. Only taking the Revlimid every other day. Not sure what
Dr. Sarriera will want me to do. I have an appointment with him on Thursday. So we will see. Also, will do the Multiple Myeloma lab draw to see what my counts are now. Funny, but I do not have to fast for any of these blood tests.
We went to our Myeloma support group meeting tonight. Have not been since last September. Good to see some of the people that were there back when we were going. There were a lot of new people also. Just want to write about a few. Helps me remember.
Ken - he is the founder of this group in this area. Been 12 years since he was diagnosed. 10 years ago he had a transplant. Revlimid is his maintenance drug.
Ben - very young guy. Was diagnosed in June of last year. Has been on a program of Revlimid, Velcade and steriods since. He does not have any active Myeloma cancer cells in his bone marrow at this time. He knows that it's just a matter of time till they reappear. No plans at this time for a transplant.
Gene - probably my age. I forget when he was diagnosed. He is going through testing for his transplant. Had some labs that do not look good so not sure when he can get his transplant.
Kathie - first time to the meeting. Diagnosed early 2013 - transplant late 2013. This lady was an pediatric oncology nurse. Dealt with children with cancer. Said never did she ever think she would end up with cancer.
Everyone got a chance to tell their story and everyone listens even though some of them we had already heard at other meetings. Everyone who has had a transplant, relives their transplant while someone tells about their transplant. Everyone who is taking Revlimid or Velcade or Zometa shakes their head as someone says they are taking Revlimid or Velcade or Zometa. Everyone who has had a bone marrow biopsy relives the pain they had as someone describes their pain. Multiple Myeloma has struck us and we are there supporting each other with a smile, pat on the back, a nod, a story! A great group that I am glad to be a part of.
Last person I want to talk about is Cynthia.
Cynthia - transplant in December. Can't remember any other of her details because all I could do was stare at how much hair she had for just having a transplant in December. All I could think was - she has hair, how can she have so much hair when she just had a transplant in December - maybe she never lost it - maybe if I wouldn't have had mine shaved!!! My mind just focused on her hair and not her other details. Finally Bill said something about me worrying as to why she has hair and her transplant was so recent. He heard what she really said. It was December of 2015 not 2016. Duh me!!!
Quote:
Be strong as you never know who you are inspiring. Beautiful people do not just happen.
Monday, April 3, 2017
Must be the scarf or the hat!
It's back. Yes, the rash is back. Seems like once I do the Revlimid every day, it starts. So back to every other day to see what happens. It's not as severe as previously but didn't get to day 4 of the every day taking of the pill to see if it would be. That's about the day that it always started before. Just don't know what Dr. Sarriera will do if the rash continues. I do not see him until next week.
My Vertigo seems to be just about gone. Only happens a little bit if I roll from one side to another once in bed. Hopefully it was just a fluke one time thing. However, Dr. Henley said it could come again at any time once it passes, if it did. Still am not convinced it was the mixture of the Revlimid with my other meds I take. These meds are different from what I was when I previously took Revlimid. Just saying.
I had a wonderful friend call me today just to talk. We talked for a long time. One thing she did ask me was what did I do when I get anxious. And I still do have some anxiety. One of the things I do is sew. I have made several lap quilts, a scrappy tote bag, finished some squares for another quilt I am making but haven't sewn together yet, started another set of squares, made a few squares from a You Tube person I really like to watch. Another thing that makes me forget whatever is causing me to be anxious is watch You Tube quilting videos. I can watch them over and over! Also just sitting and talking with Bill about what is causing me to be anxious helps me a lot! What are some of the things that make me anxious? Well, knowing there isn't an end in sight for this disease is the main one, not knowing if I will ever reach remission, not knowing if and when Multiple Myeloma will strike again, the cost of my meds, the lab results every time I have to have labs drawn, not being able to drive yet. These are a few things that can cause me to be anxious. These are a few that I tend to bury when I can. These are a few that I will someday not remember that they caused me to be anxious. I can only hope and pray that will happen.
Kristi and I went to see a live performance of The Price Is Right on Sunday. Even though we did not "come on down", we really enjoyed it. What excellent seats we had too. Only 4 rows back from the stage. Not sure why our names weren't picked. There were only 3200 seats sold for that show. They actually had another performance later that day because of the sold out show we went to. Once we got there, we were told to go over to the registration area and get our official The Price Is Right name tags and to enter our names in to the drawing to be pick as a contestant along with the other 3200 names. ;) As I was leaving the registration area, a lady stopped me and asked me if I was in treatment? I said yes. She said she had just finished up and was clean of cancer. She then gave me a hug and said God bless you! So kind. I guess she knew because of my hat/scarf I had on.
Quote:
I wish I could take all this pain and sorrow from you. But for now, I will offer my hand to hold and my shoulder to lean upon.
It's back. Yes, the rash is back. Seems like once I do the Revlimid every day, it starts. So back to every other day to see what happens. It's not as severe as previously but didn't get to day 4 of the every day taking of the pill to see if it would be. That's about the day that it always started before. Just don't know what Dr. Sarriera will do if the rash continues. I do not see him until next week.
My Vertigo seems to be just about gone. Only happens a little bit if I roll from one side to another once in bed. Hopefully it was just a fluke one time thing. However, Dr. Henley said it could come again at any time once it passes, if it did. Still am not convinced it was the mixture of the Revlimid with my other meds I take. These meds are different from what I was when I previously took Revlimid. Just saying.
I had a wonderful friend call me today just to talk. We talked for a long time. One thing she did ask me was what did I do when I get anxious. And I still do have some anxiety. One of the things I do is sew. I have made several lap quilts, a scrappy tote bag, finished some squares for another quilt I am making but haven't sewn together yet, started another set of squares, made a few squares from a You Tube person I really like to watch. Another thing that makes me forget whatever is causing me to be anxious is watch You Tube quilting videos. I can watch them over and over! Also just sitting and talking with Bill about what is causing me to be anxious helps me a lot! What are some of the things that make me anxious? Well, knowing there isn't an end in sight for this disease is the main one, not knowing if I will ever reach remission, not knowing if and when Multiple Myeloma will strike again, the cost of my meds, the lab results every time I have to have labs drawn, not being able to drive yet. These are a few things that can cause me to be anxious. These are a few that I tend to bury when I can. These are a few that I will someday not remember that they caused me to be anxious. I can only hope and pray that will happen.
Kristi and I went to see a live performance of The Price Is Right on Sunday. Even though we did not "come on down", we really enjoyed it. What excellent seats we had too. Only 4 rows back from the stage. Not sure why our names weren't picked. There were only 3200 seats sold for that show. They actually had another performance later that day because of the sold out show we went to. Once we got there, we were told to go over to the registration area and get our official The Price Is Right name tags and to enter our names in to the drawing to be pick as a contestant along with the other 3200 names. ;) As I was leaving the registration area, a lady stopped me and asked me if I was in treatment? I said yes. She said she had just finished up and was clean of cancer. She then gave me a hug and said God bless you! So kind. I guess she knew because of my hat/scarf I had on.
Quote:
I wish I could take all this pain and sorrow from you. But for now, I will offer my hand to hold and my shoulder to lean upon.
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