Wednesday, February 7, 2018

It is my hair.

Today was the end of cycle 6.  Is it the end of my treatment plan moving me on to a maintenance plan?  Could be.  The bone marrow biopsy results will be the deciding factor.  The bone marrow biopsy results will soon be back to Dr. Sarriera so he can make the decision as to where to go from here. Well, first I have to have the biopsy done.  That's this Friday, the 9th.  Have to be at the hospital at 9 for registration.  Ugh.  Surgery is scheduled for 11.  Takes about 30 to do.  Prep time takes longer than the surgery.

My 24 hour urine collection starts in the early AM tomorrow and goes to early Friday AM.  This is a note to self so when they ask when was the last time I did this, I can refer back to my blog.  I have referred back several times when I can't remember when I did something or when they had me do something they couldn't remember.  Like earlier, I couldn't remember when my last bone marrow biopsy was done.  Found it here.  Even found out they did it on the left side the last time. So will be asking them to use the right side this time.  Good info to keep me remembering.  One of the reasons I started my blog in the beginning.  That and to express my feelings, good or bad, during this battle.  And what a battle it's been.  Soon to be 2 years.  Still fighting!!!  Still praying!!!

Had a few chemo moments this week.  I was taking my 11 Cytoxan last night and started to panic.  Ran to find Bill and was hysterical saying that I took my Cytoxan last night, Tuesday, and took them again tonight, Wednesday.  OMG, what was I to do??  Well, Bill told me that it was Tuesday and not Wednesday and I was to be taking them.  Took me a bit to calm down.  Then tonight I told him that I had to fast starting 12 PM tonight for my surgery tomorrow.  Well, tomorrow is Thursday and not Friday.  Duh.  I hate when this stuff happens.  I know it's chemo brain.  Ben has the same thing happening too.  I also have trouble remember words when I am talking.  Like I was trying to explain or ask Bill something about, uh, uh, uh, my iPad.  Maddening.

I have worn a hat for so long, removing it when I get hot.  Lately there has been several times since I have stopped wearing hats,  I was hot and reached up to take my hat off only to find out I didn't have one on.  It is my hair making me sweat.  It is my hair up there.  It is my hair that's taken so long to get to a point I could have Cynthia (my hairdresser) cut and style so I can go out without my hat.  It is my hair that I can even use a blow dryer on.  It is my hair all salt and pepper looking; more pepper.  The only spot that isn't covered by much more than peach fuzz is the area when the radiation zapped it.  But it's growing slowly but surely.  I don't feel uncomfortable going anywhere without a hat.  I can't see the back anyway.  It is my hair.

Quote:

I will say having someone pick you up when fall, stand by your side through every appointment, every treatment, there for bad news and there for good news, there to hold you when you cry, laugh with you at your stupid mistakes and this list goes on, is invaluable.
I



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