Do you like turkey?
Day 1 of my new treatment. We changed the days to Tuesdays and Wednesdays to have better control of days if there were problems. I still take the 10 Dex (steroids), my regulars, the drip and now the 11 Cyclophosphamide which replaces the Pomalyst. Here is how my med day is on Tuesdays - 4 morning pills with breakfast (Lyrics, Acyclovir, 2 vitamins), then the 10 Dex (steroids). Head to the Cancer Center for an appointment usually around 1 or 2 where I get my labs drawn. Then to my room for the Kyprolis chemo drip. Next up is my 3 o'clock meds (Lyrica and Statin). Depending on when we get home, these may be later than 3. Next, 8 o'clock meds (Lyrica and Acyclovir). And now around 9:30, my 11 Cyclophosphamide chemo pills (I will be calling these Cyclops). So let's count. 4, 10, 2, 2, 11 = 29 and that's not counting the chemo drip. This is just on Tuesday each week for 3 weeks. The Dex is continual; no break.
Today, Tuesday and every Tuesday during my cycles will be our long day. Once labs are drawn and sent for testing, the results are sent to my chemo nurse for review. Once she sees all in order, she will contact pharmacy to mix my Kyprolis drip. This whole process takes a bit of time. Once mixed, sent to the nurse and she administers along with a saline drip afterwards. Some do some of the saline before and save some for after the Kryprolis. Their preference. Then we are on our way.
Well, today when my labs came back, they flagged my bilirubin (or as Kerri called it, my billybob). It was up. Nurse, whose name is Patrice, explained this could be caused by my meds or a slight infection. Patrice had to contact Dr. Sarriera regarding this increase to see what needed to be done with my drip dosage. This again takes time. And on top of that, I had noticed the last few days of a slight burning when I go to the bathroom. So an urinalysis was ordered. Those results, I should know by tomorrow. Finally heard back from Dr. Sarriera. Decrease the dosage of the Kyprolis. She contacted pharmacy, dose mixed, sent to nurse, set up drip and saline. Finally left about 4. Got there about 12:45. Tomorrow, Wednesday will just be my chemo drip and regular 8 meds. Chemo drip will be for the 3 weeks only also. Very confusing I am sure but I got the wonderful calendar from Desiree.
Speaking of Desiree, I asked her if I could come talk to her for about 5 minutes after my treatment. All set up. We went down to her floor and asked someone to tell her we were in the waiting room when she was ready. In about 10 minutes out comes Randi, her assistant, and told us they made her go lay down a bit. Her stomach was hardening up (early contractions I would say). Randi said she told her to ask us to wait a bit. Not happening on our part especially since we are going to be back at the Cancer Center tomorrow. Please relay this to Desiree. Not that important. Randi also told us the babies weighed about 5 lbs each. Good size. Never know with twins! I can't say at this time what I wanted to see her about. Just in case. She reads my blog now. And I will inquire about her tomorrow.
We went over to Michelle and Gery's for dinner tonight. Yummy stuffed green peppers, mashed potatoes and porcupine meatballs. They knew we had a long day at the Cancer Center on Tuesday. I was telling them about my 29 pill day. Said I only 13 to go when we got home. Gery asked what do I take them with? I said water. He asked - do you like turkey? Huh? Well he gives Murphy (their dog) his in some turkey. Lean turkey. He realized what he said and we couldn't quit laughing. Maybe you had to be there. But I am guessing Kristi, Sandy and Denny quite understand and can laugh with us.
Quote:
Strength is when you have so much to cry about but you try to smile instead.
Tuesday, August 29, 2017
Wednesday, August 23, 2017
Colorado Fondue
Today was a fairly good day. No drugs other than my Acyclovir and Lyrica. The other drugs seemed to be fading away. And the rash is faded too. Bill said I didn't have my man voice this morning so that is a sign of the drugs fading. Was up at 5:45 AM for some reason. Just couldn't fall back to sleep so just got up. Well, actually got on my iPad, checked email, Facebook, messages.
Sandy came over around 11 and we actually did some shopping. CVS, Bed Bath and Beyond, Staples and Kohls. Didn't really stay long in any of these stores. I don't shop like I used to. Go get what I want and done. That makes Bill happy.
Got a call from the Cancer Center scheduler for my new dates of my Kyprolis IV drip. Starts Tuesday, August 29th. Will be Tuesdays and Wednesdays. Champa is my schedulers name. She said this will be for 3 cycles. Never met Champa in person but sure have talked to her a lot.
Ended today going out to eat with Sandy and Denny to celebrate my birthday (early). My choice was Colorado Fondue. I really like this place and wanted them to experience it. Bill had never been either. Food was great as was the company. Didn't get the chocolate fondue dessert as we were all too full. May have to go back just for that.
Quote:
Hope . It's powerful. It's real. It's all we got. Cure Myeloma.
Today was a fairly good day. No drugs other than my Acyclovir and Lyrica. The other drugs seemed to be fading away. And the rash is faded too. Bill said I didn't have my man voice this morning so that is a sign of the drugs fading. Was up at 5:45 AM for some reason. Just couldn't fall back to sleep so just got up. Well, actually got on my iPad, checked email, Facebook, messages.
Sandy came over around 11 and we actually did some shopping. CVS, Bed Bath and Beyond, Staples and Kohls. Didn't really stay long in any of these stores. I don't shop like I used to. Go get what I want and done. That makes Bill happy.
Got a call from the Cancer Center scheduler for my new dates of my Kyprolis IV drip. Starts Tuesday, August 29th. Will be Tuesdays and Wednesdays. Champa is my schedulers name. She said this will be for 3 cycles. Never met Champa in person but sure have talked to her a lot.
Ended today going out to eat with Sandy and Denny to celebrate my birthday (early). My choice was Colorado Fondue. I really like this place and wanted them to experience it. Bill had never been either. Food was great as was the company. Didn't get the chocolate fondue dessert as we were all too full. May have to go back just for that.
Quote:
Hope . It's powerful. It's real. It's all we got. Cure Myeloma.
Tuesday, August 22, 2017
Room in our garage.
Had my appointment with Dr. Sarriera today. Was a very emotional appointment for me and for Bill. I lost it when he came in to see me. Told him I felt very anxious, felt very unsure of what was happening to me, felt very scare, felt very upset that this plan now isn't working, felt like I was getting no where. Dr. Sarreria was very calm and was ready to reassure me that I wasn't to be afraid. That he has another plan in place. To put me back on Cyclophosphamide (the chemo pill that I called Cyclops). This was the chemo pill I took last year amazing as it is starting about the same time. August 26th last year. This was the pill I took from end of August to October last year to help me prepare for the transplant. I did go back and read my comments and saw that I didn't have a reaction from this med.
At that time I was doing what was called CyBordD. Cyclophosphamide, Velcade and Dex. This time it will be Cyclophosphamide, Kyprolis and Dex. No Velcade because that is what caused my neuropathy. I start on this next Tuesday. I will be taking 11 pills of the Cyclophsphamide chemo med, 10 Dex (steroids) and then go have my Kyprolis chemo drip. My drip will be twice a week for three weeks and off one. The Cyclops and Dex once a week for three weeks and off one as well.
Dr. Sarreria then asked me if I wanted something to help take the edge off my anxieties. And this time I said yes. He prescribe Ativan and to only take it on an at need basis. Also, ask if I wanted to talk to someone. They have them readily available if I did. Said no to that at this time.
Did have a bright spot. My 24 hour urine test came back negative. No protein. Which means no M-Spike. Great news.
Once again, emotional as our day was, we both felt somewhat better when he left. And in comes Desiree to make us feel even better. She is such a wonderful, caring nurse. Hug kind of nurse. She went over my Cyclops drug (she remembered me calling it that), talked to help calm us down. I told her about my experience with the after hours nurse and doctor on Sunday. How I felt I was treated and how unprofessional the nurse was. She will be speaking to her manager about this situation. Said if I were a difficult patient, she could see a little of what happened. But I am not and do not deserve to be treated as such. Talked about her babies to be and how she was feeling. At the point now that she just wants to go lay down anywhere, anytime. Still very cheerful though. Only one more month.
Bill and I have lived in our home for almost 2 years now. Will be at the end of August. We have not had our CRV in the garage. Just too much stuff in the garage to put a car in there too. And, oh by the way, it's a two car garage. Finally, finally there is room in our garage for my car. Yes, finally. And the nicest thing is when you get in it to go somewhere it's not so dang hot. Cools down in a second.
Quote:
Stars can not shine without darkness.
Had my appointment with Dr. Sarriera today. Was a very emotional appointment for me and for Bill. I lost it when he came in to see me. Told him I felt very anxious, felt very unsure of what was happening to me, felt very scare, felt very upset that this plan now isn't working, felt like I was getting no where. Dr. Sarreria was very calm and was ready to reassure me that I wasn't to be afraid. That he has another plan in place. To put me back on Cyclophosphamide (the chemo pill that I called Cyclops). This was the chemo pill I took last year amazing as it is starting about the same time. August 26th last year. This was the pill I took from end of August to October last year to help me prepare for the transplant. I did go back and read my comments and saw that I didn't have a reaction from this med.
At that time I was doing what was called CyBordD. Cyclophosphamide, Velcade and Dex. This time it will be Cyclophosphamide, Kyprolis and Dex. No Velcade because that is what caused my neuropathy. I start on this next Tuesday. I will be taking 11 pills of the Cyclophsphamide chemo med, 10 Dex (steroids) and then go have my Kyprolis chemo drip. My drip will be twice a week for three weeks and off one. The Cyclops and Dex once a week for three weeks and off one as well.
Dr. Sarreria then asked me if I wanted something to help take the edge off my anxieties. And this time I said yes. He prescribe Ativan and to only take it on an at need basis. Also, ask if I wanted to talk to someone. They have them readily available if I did. Said no to that at this time.
Did have a bright spot. My 24 hour urine test came back negative. No protein. Which means no M-Spike. Great news.
Once again, emotional as our day was, we both felt somewhat better when he left. And in comes Desiree to make us feel even better. She is such a wonderful, caring nurse. Hug kind of nurse. She went over my Cyclops drug (she remembered me calling it that), talked to help calm us down. I told her about my experience with the after hours nurse and doctor on Sunday. How I felt I was treated and how unprofessional the nurse was. She will be speaking to her manager about this situation. Said if I were a difficult patient, she could see a little of what happened. But I am not and do not deserve to be treated as such. Talked about her babies to be and how she was feeling. At the point now that she just wants to go lay down anywhere, anytime. Still very cheerful though. Only one more month.
Bill and I have lived in our home for almost 2 years now. Will be at the end of August. We have not had our CRV in the garage. Just too much stuff in the garage to put a car in there too. And, oh by the way, it's a two car garage. Finally, finally there is room in our garage for my car. Yes, finally. And the nicest thing is when you get in it to go somewhere it's not so dang hot. Cools down in a second.
Quote:
Stars can not shine without darkness.
Monday, August 21, 2017
Named after a street.
Heard back this morning from Desiree. Dr. Sarriera wants me to stop taking the Polmalyst and Dex. Made me an appointment for 11:30 tomorrow, Tuesday to review with us what we do from here. Next plan. I have a lot of faith in my doctor and need to follow his protocol until we get this right. It's been over a year and I am still battling this with just a little bit of peace of mind I had off and on. No one knows when this disease will relapse but I sure didn't think it would be this soon. Nor did Dr. Sarriera. And to relapse in a different form and more aggressive. Plasmacytoma.
The lady on the 5th floor that I couldn't remember her name was there last Friday when I went for my IV drip. When she signed me in, I said I was staring at your name tag because I couldn't remember your name. Told her about my blog and she was part of my post the other night. She proceeds to tell me that her name is Elaine. Then finishes with a story. Her parents were on their way to the hospital to deliver and still hadn't pick a girls name. They past a street and saw the name Elaine and like it. So she was named after a street.
Quote:
Never allow waiting to become a habit. Live your dreams and take risks. Life is happening now.
Heard back this morning from Desiree. Dr. Sarriera wants me to stop taking the Polmalyst and Dex. Made me an appointment for 11:30 tomorrow, Tuesday to review with us what we do from here. Next plan. I have a lot of faith in my doctor and need to follow his protocol until we get this right. It's been over a year and I am still battling this with just a little bit of peace of mind I had off and on. No one knows when this disease will relapse but I sure didn't think it would be this soon. Nor did Dr. Sarriera. And to relapse in a different form and more aggressive. Plasmacytoma.
The lady on the 5th floor that I couldn't remember her name was there last Friday when I went for my IV drip. When she signed me in, I said I was staring at your name tag because I couldn't remember your name. Told her about my blog and she was part of my post the other night. She proceeds to tell me that her name is Elaine. Then finishes with a story. Her parents were on their way to the hospital to deliver and still hadn't pick a girls name. They past a street and saw the name Elaine and like it. So she was named after a street.
Quote:
Never allow waiting to become a habit. Live your dreams and take risks. Life is happening now.
Sunday, August 20, 2017
This is my life.
Well, my rash is back. Yes, it sure is. Woke up on Saturday morning with a small spot of itching on my head. Seemed to get worse as the day wore on. By Saturday night the rash had developed more. I took a Benadryl and went to bed. When I got up on Sunday morning, it was worse. Head was very tender to the touch, ears were red and swollen, rash had proceeded down my neck, chest, stomach to the top of my legs. Big patches of red, angry spots.
Called my support group number and talked to someone who in turn, said they would have the on call nurse call me back. She did. Told me to take 3 Benadryl tablets. I did and she called me back in about 2 hours. When she called back, I explained to her that the rash was still there and had spread more. She said she would call the oncology doctor to see what he wanted me to do. Finally heard back from her. I was then to start taking 40 MG of Dex and also take my Pomalyst. This I did. It's now 11:30 PM. Hoping this Pomalyst isn't going to start the rash to spread more or to itch. We will see. I have an email in to Desiree to see first thing tomorrow AM for Dr. Sarriera.
This is my life in my journey of having Myeloma. This is my life that can change so much in a couple of hours or a day. This is my life the I want to be normal again. This is my life.
Quote:
Sometimes you get to choose your battles and sometimes the battle chooses you.
Well, my rash is back. Yes, it sure is. Woke up on Saturday morning with a small spot of itching on my head. Seemed to get worse as the day wore on. By Saturday night the rash had developed more. I took a Benadryl and went to bed. When I got up on Sunday morning, it was worse. Head was very tender to the touch, ears were red and swollen, rash had proceeded down my neck, chest, stomach to the top of my legs. Big patches of red, angry spots.
Called my support group number and talked to someone who in turn, said they would have the on call nurse call me back. She did. Told me to take 3 Benadryl tablets. I did and she called me back in about 2 hours. When she called back, I explained to her that the rash was still there and had spread more. She said she would call the oncology doctor to see what he wanted me to do. Finally heard back from her. I was then to start taking 40 MG of Dex and also take my Pomalyst. This I did. It's now 11:30 PM. Hoping this Pomalyst isn't going to start the rash to spread more or to itch. We will see. I have an email in to Desiree to see first thing tomorrow AM for Dr. Sarriera.
This is my life in my journey of having Myeloma. This is my life that can change so much in a couple of hours or a day. This is my life the I want to be normal again. This is my life.
Quote:
Sometimes you get to choose your battles and sometimes the battle chooses you.
Friday, August 18, 2017
Pennsylvania Tomatoes.
Today really went quick unlike yesterday at the Cancer Center. I was taken back to the lab area to have the lines inserted in my port. Hurt a little more than yesterday's stick. Healing up nice they say. Then back to room 17 for my IV drip of Kyprolis and Saline. That took about another 45 minutes total. My nurse in room 17 was Meredith. Another friendly, caring nurse.
Kara was my lab nurse today. She was the first nurse I met last year about this time when we were first doing the Rev and Velcade. Yes, a little over a year ago. A little year ago this all started. A little over a year ago we thought we were going to beat this disease in a few months. And now a year forwarded, we are starting another battle to beat this disease. Not with Rev, Velcade and Dex. But with Pomalyst, Kyprolis and Dex. This day was my second day. I will take the Pomalyst for 21 days and then off 7, Kyprolis IV drip will be every Thursday and Friday for 3 weeks and then off 1, and the Dex every 7 days with no time off. This will be the pattern for the next 4 to 6 months. Probably more likely 6 months as this relapse of Myeloma I am experiencing is so aggressive. We are praying this time it is going to work. This time the lumps on my head will go away and whatever is showing in my blood work again will go back to being unmeasurable. This time!!!
I am back to saying I want to hear that word I have waited to hear for over a year. REMISSION! Kathy, you are in REMISSION! Not sure how Dr. Sarriera in his nice foreign voice will pronounce the word REMISSION but I want to hear him say it. And I want it to last for quite a while. I want to be one of those Multiple Myeloma patient that has 10 - 20 years added to their lives.
Tonight we picked up Sandy and Denny at Sanford Airport for a weeks stay in nice, sunny, rainy and humid Florida. Took them to the grocery store and then to their condo. Denny brought an Amazon box out of his carryon luggage. In the box were Pennsylvania tomatoes. Yes, real Pennsylvania tomatoes. And they traveled well. Had one with our late dinner and was really good. Rest we brought home. I sent a picture of them to Kristi and Kerri. Kristi hasn't made it here yet. She said she was running down the road from her house in a red dress and high heels to get some of the tomatoes.
Quote:
Life is without meaning. You bring the meaning to it. The meaning of life is whatever you want it to mean. My meaning of life is being alive.
Today really went quick unlike yesterday at the Cancer Center. I was taken back to the lab area to have the lines inserted in my port. Hurt a little more than yesterday's stick. Healing up nice they say. Then back to room 17 for my IV drip of Kyprolis and Saline. That took about another 45 minutes total. My nurse in room 17 was Meredith. Another friendly, caring nurse.
Kara was my lab nurse today. She was the first nurse I met last year about this time when we were first doing the Rev and Velcade. Yes, a little over a year ago. A little year ago this all started. A little over a year ago we thought we were going to beat this disease in a few months. And now a year forwarded, we are starting another battle to beat this disease. Not with Rev, Velcade and Dex. But with Pomalyst, Kyprolis and Dex. This day was my second day. I will take the Pomalyst for 21 days and then off 7, Kyprolis IV drip will be every Thursday and Friday for 3 weeks and then off 1, and the Dex every 7 days with no time off. This will be the pattern for the next 4 to 6 months. Probably more likely 6 months as this relapse of Myeloma I am experiencing is so aggressive. We are praying this time it is going to work. This time the lumps on my head will go away and whatever is showing in my blood work again will go back to being unmeasurable. This time!!!
I am back to saying I want to hear that word I have waited to hear for over a year. REMISSION! Kathy, you are in REMISSION! Not sure how Dr. Sarriera in his nice foreign voice will pronounce the word REMISSION but I want to hear him say it. And I want it to last for quite a while. I want to be one of those Multiple Myeloma patient that has 10 - 20 years added to their lives.
Tonight we picked up Sandy and Denny at Sanford Airport for a weeks stay in nice, sunny, rainy and humid Florida. Took them to the grocery store and then to their condo. Denny brought an Amazon box out of his carryon luggage. In the box were Pennsylvania tomatoes. Yes, real Pennsylvania tomatoes. And they traveled well. Had one with our late dinner and was really good. Rest we brought home. I sent a picture of them to Kristi and Kerri. Kristi hasn't made it here yet. She said she was running down the road from her house in a red dress and high heels to get some of the tomatoes.
Quote:
Life is without meaning. You bring the meaning to it. The meaning of life is whatever you want it to mean. My meaning of life is being alive.
Thursday, August 17, 2017
O 68!
Today started my new treatment plan. Left the house at 11:30 and got back around 4:30. Two of the hours were driving time. When we got to the Cancer Center, we went right to the lab area on 1st floor to drop of my 24 hour urine test. Then up to the 5th floorr for my Kyprolis IVdrip. Only waited about 10 minutes and was called back to their lab to insert the needle for the drip in to my port. I told the tech, Miles, I was concerned the incision for the placement of the port was healed enough. He examined and felt it was. Cleaned the area, got the needle with tubes hanging off it, asked me if I wanted him to count to 3 and stick it in my skin to the port. Told him just to go for it. He did. Surprisingly didn't really feel much of a stick. Miles asked me if I want him to leave it in overnight since I was coming back tomorrow. No, didn't think so. Just do it again tomorrow. Drew two tubes of blood and done. No blood draw tomorrow, just insert needle.
Miles collected Bill and our stuff and took us back to our room. My nurse for the day was Rhonda. Who happened to be at lunch so Trisha got the preliminaries done. A few questions. Found out I was "old hat" with the 5th floor. Explained my labs where being tested and results sent to pharmacy and 5th floor. Once done, pharmacy will mix my dosage of Kyprolis for my drip. Chair reclined, heat on, massager on, warm blanket, IPad out, relax. Same for Bill. Oh, she got me a turkey wrap, chips and yogurt.
After a bit of a wait, Rhonda comes in and introduces herself. Asked if I had taken my Dex this morning before coming for treatment. No. She said she really wanted me to have the Dex. Would email/call my doctor to see if she could have a drip of it before my Krypolis drip. More waiting. Finally came in and gave me 10 Dex pills to take. Doctor preferred the pills. Thing is, I have my prescription of Dex waiting to be picked up at the pharmacy. Oh well. A bit more waiting. Finally came in with a bag of Saline. Hooked that up on the pole but not to me yet. Said shouldn't be much longer. Meanwhile, hospital volunteer, Troy, came in with red velvet cupcakes. My phone was ringing, had it turn off, but Troy saw it was ringing. I told him it was my mom and he decided to answer it. Was so funny. He told her he was her long lost son Troy. They talked a bit. I could her her laughing. Gave me the phone and I told her I would call later. She asked if that was one of my doctors. Told her yes as a joke. Didn't get to tell her any different. I am sure she had a ball with that one with her friends. Will tell her tomorrow or maybe not.
Kyprolis finally there. Rhonda hooked it up on the pole then to me. Mike, another nurse, came in and asked my name and birth day. Told him and he read it on the bag of Kypolis to make sure it was my meds. Rhonda started the drip. 10 minutes done. Really! She said it was a very low dose since first day. Be the same tomorrow. She then stated the saline to flush my port. 5 minutes done. Unhooked me. Discussed some possible side effects and when they may occur. Said tomorrow will surely go quick. No labs need. Meds will probably be mixed and ready till we get there since they are the same as today. I thanked Rhonda for keeping us informed as to what was going on today. Done.
Got home. Changed and cleaned up a bit. Bingo with Michelle at our local Elks club. They really play some different games. Kites, Do Dads, Crazy L, X's, Railroad Ties, Baseball Diamonds, Z's, Pick You Own, King and Queen and more. Fun. Michelle and I just watch what cards the person next to us is using. We did talk to her but she wasn't so friendly at first. Lightened up then. Michelle actually did win a game on the call of O 68. Yeah Michelle. Next week we are taking Sandy with us. Bill and I will be picking Sandy and Denny up from the airport tomorrow night. Can't wait!!!
Quote:
You must embrace pain and burn it as fuel for our journey.
Today started my new treatment plan. Left the house at 11:30 and got back around 4:30. Two of the hours were driving time. When we got to the Cancer Center, we went right to the lab area on 1st floor to drop of my 24 hour urine test. Then up to the 5th floorr for my Kyprolis IVdrip. Only waited about 10 minutes and was called back to their lab to insert the needle for the drip in to my port. I told the tech, Miles, I was concerned the incision for the placement of the port was healed enough. He examined and felt it was. Cleaned the area, got the needle with tubes hanging off it, asked me if I wanted him to count to 3 and stick it in my skin to the port. Told him just to go for it. He did. Surprisingly didn't really feel much of a stick. Miles asked me if I want him to leave it in overnight since I was coming back tomorrow. No, didn't think so. Just do it again tomorrow. Drew two tubes of blood and done. No blood draw tomorrow, just insert needle.
Miles collected Bill and our stuff and took us back to our room. My nurse for the day was Rhonda. Who happened to be at lunch so Trisha got the preliminaries done. A few questions. Found out I was "old hat" with the 5th floor. Explained my labs where being tested and results sent to pharmacy and 5th floor. Once done, pharmacy will mix my dosage of Kyprolis for my drip. Chair reclined, heat on, massager on, warm blanket, IPad out, relax. Same for Bill. Oh, she got me a turkey wrap, chips and yogurt.
After a bit of a wait, Rhonda comes in and introduces herself. Asked if I had taken my Dex this morning before coming for treatment. No. She said she really wanted me to have the Dex. Would email/call my doctor to see if she could have a drip of it before my Krypolis drip. More waiting. Finally came in and gave me 10 Dex pills to take. Doctor preferred the pills. Thing is, I have my prescription of Dex waiting to be picked up at the pharmacy. Oh well. A bit more waiting. Finally came in with a bag of Saline. Hooked that up on the pole but not to me yet. Said shouldn't be much longer. Meanwhile, hospital volunteer, Troy, came in with red velvet cupcakes. My phone was ringing, had it turn off, but Troy saw it was ringing. I told him it was my mom and he decided to answer it. Was so funny. He told her he was her long lost son Troy. They talked a bit. I could her her laughing. Gave me the phone and I told her I would call later. She asked if that was one of my doctors. Told her yes as a joke. Didn't get to tell her any different. I am sure she had a ball with that one with her friends. Will tell her tomorrow or maybe not.
Kyprolis finally there. Rhonda hooked it up on the pole then to me. Mike, another nurse, came in and asked my name and birth day. Told him and he read it on the bag of Kypolis to make sure it was my meds. Rhonda started the drip. 10 minutes done. Really! She said it was a very low dose since first day. Be the same tomorrow. She then stated the saline to flush my port. 5 minutes done. Unhooked me. Discussed some possible side effects and when they may occur. Said tomorrow will surely go quick. No labs need. Meds will probably be mixed and ready till we get there since they are the same as today. I thanked Rhonda for keeping us informed as to what was going on today. Done.
Got home. Changed and cleaned up a bit. Bingo with Michelle at our local Elks club. They really play some different games. Kites, Do Dads, Crazy L, X's, Railroad Ties, Baseball Diamonds, Z's, Pick You Own, King and Queen and more. Fun. Michelle and I just watch what cards the person next to us is using. We did talk to her but she wasn't so friendly at first. Lightened up then. Michelle actually did win a game on the call of O 68. Yeah Michelle. Next week we are taking Sandy with us. Bill and I will be picking Sandy and Denny up from the airport tomorrow night. Can't wait!!!
Quote:
You must embrace pain and burn it as fuel for our journey.
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