This is my life.

Well, my rash is back.  Yes, it sure is.  Woke up on Saturday morning with a small spot of itching on my head.  Seemed to get worse as the day wore on.  By Saturday night the rash had developed more.  I took a Benadryl and went to bed.  When I got up on Sunday morning, it was worse.  Head was very tender to the touch, ears were red and swollen, rash had proceeded down my neck, chest, stomach to the top of my legs.  Big patches of red, angry spots.

Called my support group number and talked to someone who in turn, said they would have the on call nurse call me back.  She did.  Told me to take 3 Benadryl tablets.  I did and she called me back in about 2 hours.  When she called back, I explained to her that the rash was still there and had spread more.  She said she would call the oncology doctor to see what he wanted me to do.  Finally heard back from her.  I was then to start taking 40 MG of Dex and also take my Pomalyst.  This I did.  It's now 11:30 PM.  Hoping this Pomalyst isn't going to start the rash to spread more or to itch.  We will see.  I have an email in to Desiree to see first thing tomorrow AM for Dr. Sarriera.

This is my life in my journey of having Myeloma.  This is my life that can change so much in a couple of hours or a day.  This is my life the I want to be normal again.  This is my life.

Quote:

Sometimes you get to choose your battles and sometimes the battle chooses you.