Tuesday, September 26, 2017

Honey, I hate to say this....

Awake at 6:30 but stayed in bed.  Laid there thinking.  Sometimes that's good and sometimes, not so good.  This morning was between the two.  I was thinking about everything.  Not in order of thoughts or events.  The first diagnosis, the days after the diagnosis,  waiting for treatment plans to work, meeting of Dr. Sarriera, Abby and Desiree, the transplant, the awful days after the transplant, Tampa, rashes and hives, fatigue, being frightened, doctors appointments, words we thought we would never know the meaning of, neuropathy, hair loss, Myeloma, Multiple Myeloma, our support group, lab results, radiation, treatment plans ditched, chemo, more chemo and more chemo.  Words we now know and situations we have made it through.  Words and situations we handle with our ups and downs.  Words and situations we sometimes control and sometimes not.  Words and situations that will continue on our Multiple Myeloma journey.

After my hour or so of thinking, I got up to begin my Cycle 2, day 1 of my treatment plan.  Which means the start of taking my 29 pills.  Got the first 15 done by the time to leave for my chemo drip of Kyprolis.  This included my 10 Dexamethasone.

The Cancer Center was not busy in the 5LP area today.  Was taken back within 5 minutes of checking in to get my lines put in my port and have my labs drawn to see how the Kyprolis drip will be mixed by the pharmacy.  Was sent right to my room (ha) as soon as that was done.  No waiting.  Collected Bill and back to room 2.  My nurse today was Jessica.  May have been a sign that she was not a happy nurse since her name was not posted on the door.   Because she was not a happy nurse.  Full of business person.  Questions and done.  Would let me know the progress of labs etc.  Did get me some cheese, crackers, grapes and yogurt.  And a warm blanket.  So snuggled up on my heated lounge chair wrapped in my warm blanket and waited.

About 45 minutes later, got the lab results back.  Hold put on the pharmacy mix.  My bilirubin was up again.  So needed to contact Dr. Sarriera to see if he wanted to continue, make the mix dosage lower, keep the same or not do the treatment.  Please don't say no treatment.  Dr. Sarriera so it was okay to keep the dosage the same (had lower last treatment because of the bilirubin results).  Pharmacy mixed and sent to up to 5LP.  Drip set up and done in 10 minutes, saline for a bit, lines removed and done.  Jessica still not a happy nurse.  Left the 5th floor and down to 2nd to see Desiree.

Desiree was just coming back for lunch.  She was smiling as she walked to us.  So glad we got to see each other.  Hugs.  Far away hugs because of the belly.  Today was her last day of work.  Has tomorrow at home.  Thursday, Desiree and her husband (sorry I forget his name) get to bring two precious babies in to their family.  One precious girl and one precious boy.  Names I won't say because not sure if Desiree has told everyone.  So happy for them.  Can't wait to see pictures but most of all, can't wait to hear Desiree and babies are doing well.  Desiree has been there so much for me for over a year and has become very special to me.  She looked really nice all dressed in black today.  Bill had to make her laugh, of course, and said - Honey, I hate to say this but black isn't very slimming on you.  To which she replied - This is my Ninja suit.  She loves Bill too.  Good luck, my friend, good luck!!!!  Will be in my prayers and thoughts.

Now, I wait to finish the last of my 29 pill day.  Only 11 more of the chemo pill, Cyclophosomide, to take and I will be done.  Will be taking them in about 1/2 hour.  Almost 10 now.  But will be up for awhile yet.  Steroids!  Yep, steroids!

Quote:

Cancer-an awful word we fear.  When we first hear it said to us and to the people we love, we finally realize all things that we never paid attention to before.






Sunday, September 24, 2017

Sounds of the morning.

Was so nice to have some time off treatments, pills, running to the Cancer Center.  May not seem like a lot but to us it is.  We were able to breath a little.  In two days, we will be back to Cycle 2, Day 1. Only 5 more 3 week cycles to go.

My days from Thursday to today, Sunday, went okay.  I had a few days of being really tired but figured that was the steroid doing.  Friday I got mom for an overnight.  Took her to Walgreens, her bank, to get her nails done and then we got crab legs.  So yummy.  Saturday, we went to Stein Mart before I took her home.  She hasn't been shopping for awhile and decided she needed a new purse and wallet.

I try to get up and moving anywhere from 8 to 8:30.  But most times I lay in bed and listen to Bill in the kitchen getting my morning regiment together.  I hear the clinking of the frozen lemon dropping in the glass as he makes my lemon water.  I hear the pill bottles opening as he gets my morning pills together.  I hear the refrigerator opening as he gets out the fruit to make my morning bowl of fresh fruits.  I hear this almost every morning and I thank God for Bill.  My sounds of the morning.  This journey of mine would not have been so far along if I didn't have the support of Bill.  Together we have fought many battles and we know we have more to fight.  Together.

Quote:

Live each day with wings of faith and roots of hope.







Wednesday, September 20, 2017

Beautiful salad.

Was able to get to bed around 1 this morning and was up at 4:30.  Then fell asleep around 6:30 till around 7ish.  Been up since except of a half hour power nap around 3.  These steroids really have me wired like they do each week.   Today instead of getting the crock pot out to put my meatballs and spaghetti sauce in, I go the toaster out.  Had a sales clerk at Joann Fabric not listening to what I was saying and was ready to go off on her and Bill stepped in.  Probably a good thing.  Right now I am about as tired as, NOT!  Do have a bit of a rash this evening.  I had a glass of wine earlier so thinking that was what started it.  Drinking, of course, my water to flush it through my system.

So nice not having to plan our week around my Tuesday and Wednesday Cancer Center visits.  We were able to get some running done for a few things we needed without having to hurry before my visits or feeling sluggish and doing them after my visits.  But we know we have 4 to 6 more months of the Tuesday and Wednesday visits along with doctor appointment along the way either at the Cancer Center for me or our regular family doctor.  We just accept as such.

Mom is not coming now until Friday and will spend the night with us.  We are both craving crab legs.  But they are between 10.99 to 12.99 a pound.  Mom can eat about 3 lbs and me probably 2.  Bill isn't so crazy about them.  The cheapest we have found them since living in Florida has been $6.99 a lbs.  And that has been awhile.  Usually sale price is $8.99 per lbs.

We invited Michelle and Gery over for spaghetti tonight.  Gery made the salad for us.  And what a beautiful salad!   When I took the top off the pan there were onion circles, grated carrots, spices of some kind garnishing the top of the lettuce.  Wish I would have taken a picture.  Thanks Gery and Michelle for the salad and bread.  Most of all for the laughter we share!  Great impromptu dinner.

Quote:

Don't count the days, make the days count.

Tuesday, September 19, 2017

Kackels!

Wonderful news today.  My Myeloma labs come back today.  My M-spike (Para Protein) is at zero.  Not able to measure any Myeloma.  This is a measurement that Bill and I love to see.  And along with that lab result, my IFE showed no monoclonal bands detected.  This test relates to the M-spike.  If the M-spike is excessive, the IFE determines which subtype of M protein is present thus pointing to the presence of Multiple Myeloma.  I sent an email to Desiree (yes, she is still around) to have Abby review.  Told Desiree these two tests make my heart smile.  Abby reviewed, concurred with what I saw and said the results make her heart smile too.  I will be having these lab tests done every 4 weeks.  This will be Dr. Sarriera and Abby's monitoring of how I am doing.  We need these two important (they are all important) lab results to stay as stated above.

I have a few new viewers of my blog so thought I would add the next information in for them. As we know, Myeloma is a blood cancer found in the bone marrow.  White blood cells form as plasma cells.  These plasma cells create antibodies to help fight infections. Multiple Myeloma causes cancer cells to accumulate in the bone marrow.  They crowd out the healthy blood cells.  Rather than produce helpful antibodies, the cancer cells produce abnormal proteins.

My weekend went pretty well.  Coming down off the steroids make me very tired.  So slept a lot Friday, Saturday and Sunday.   Had dinner at Matt and Kristi's Friday night, shop a bit with Michelle on Saturday and just kicked back most of the day Sunday.

Is nice not having to go to the Cancer Center today and tomorrow.  But still have to take my 10 Dex (steroids) today.  That's why I am still up at 12:15 posting on my blog.  Was going to get mom today but she has gout so we postponed till tomorrow if her meds kick in.  Will call her in the morning to see how she feels.

Monday was our support group meeting.  It was the 10th year "birthday" since Ken started the group.  Carmella (Ben's wife) brought decorations that we hung and some center pieces, Cindy (another Myeloma survivor) brought center pieces too,  there were balloons galore, a huge cake and smiles all around from Ken.  I had asked our oncology nurse, Arlene,  if she would contact the IMF (International Myeloma Foundation group that supports our group) and see if they would send a rep to congratulate Ken for hanging in there for 10 years as our leader.  Arlene did and the IMF did.  Ken seemed to be very emotional when he saw her (Anne).  Our speaker did not show up.  We think because of Irma and having to move our meeting out another week, he got his dates messed up.  So we had a nice informal meeting with our Myeloma fighters each speaking.  Just about every one of them said this meeting has been a priority since they joined the group, how much it has helped them and how much each of us mean to them.  Great emotional comments from them as well as our care givers.  Well, Bill did say that he was locking me in my room starting tonight since I take my Dexamethasone today.  Ken ended the meeting saying he had three things he lives by:

Trust in God
Ask for help
Don't be so private

Good advice.  Good group that I am proud to be a part of even knowing the reason we are there.   We are not dying from Myeloma, we are living with Myeloma.  That per Dave another fighter.

My step-mother, Peg, has been on my mind a lot.  She was a wonderful, loving, caring stepmother.  She loved me and my sisters and brothers like we were her own.  Boy, what a time we gave her but she was always there for us covering up things from our dad.  When I see Kristi, Matt and my granddaughters Sasha and Ellie, I think about how Peg would have loved being part of their lives. When I see Kerri, her husband Paul and our 6 other grandkids, Jakob, Kristopher, Chad, Leah, Juliana and Layton, I think about how Peg would have loved being part of their lives.  When I see my niece Michelle and her tribe as she calls them, Jasmine, Jordan, Desi, Kaden, Molly and Kyle, I think about how Peg would have loved being part of their lives.  When I see my nephew Johnnie and his wife Wanda and step-daughter Ashlee, I think about how Peg would have loved being part of their lives.  When I see my nephew Matt, his wife Connie and their beautiful daughter Madeleine, I think about how Peg would have loved being part of their lives.  Step didn't and wouldn't have mattered to her.  Love and miss you Peg.  And oh, my nickname she gave me was Kackels!!!

Quote:

I am here today and today, I would rather smile than cry.






Thursday, September 14, 2017

You have a zoo at your house.

Just want to have an update of my end of cycle one days to help me remember.  I finally fell asleep around 12:30 but on the couch with my laptop on my lap.  Bill woke me up around 2 and I went to bed.  Rash was still there but not as red.  I drank so much water that I think I flushed some of it out.  I did sleep then until around 7:30.

Still drinking and still have a rash.  Again, looks more like a sunburn and it's getting less and less noticeable.  Steroids still have me not tired enough to go to bed.  It's 11:45.  Will make myself go to bed soon.

So we have a nest of baby squirrels in the stucco columns in the front of our house.  Bill has been trying to chase them out so he can board up the columns to make sure they don't come back to have more babies.  Michelle came over to pick me up to go to Jeremiah's two nights ago and the momma and her babies sat staring at me.  Made Bill go out and make them go away.

And of course, we have a frog that likes to sing to us at night.

Tonight Michelle came over to pick me so we could go to Bingo.  I went to open the door and there was a turtle walking towards the door.  Really!!  Again had Bill go out before me and make it go away.  Was a big box turtle.  When I got in the car with Michelle she said "OMG, you have a zoo at your house!"

Just some ramblings of my life!  Need those along with my life of cancer posts.

Quote:

Learn from yesterday.  Live for today.  Hope for tomorrow.

Wednesday, September 13, 2017

Planes.

Today was my final day of cycle 1.  Yippee.  We really had a long wait today though.  Appointment was for 12:30 and never got done until around 3:30.  I think because of Irma, there were a lot of patients that had to be rescheduled.  Finally my oncology nurse, Stephanie, took me back to my room and placed my line in for my port in her room instead of waiting for the lab to do the placement.    My Kyprolis was already there.  She was super busy with two other patients so she tended to them first and then me.  Told her that was okay, we weren't in any rush.  When she took my vitals, I noticed my blood pressure was high.  I usually run 112 to about 128 (and it has been lower) over 62 ish.  Today it was 137/67.  Stephanie asked if I had blood pressure meds to take at home.  No, I do not take blood pressure meds.  She finally hooked me up for my drip which took all of 10 minutes, dripped in some saline taking another 5 minutes.  Cleaned my port with Heparin.  Removed my lines and done.

One of the main reason my blood pressure was up was caused in the waiting room.  There were these people we were seated near, room was full,  that were on their cell phones talking so loud it was infuriating. I threw some daggers but didn't help.  She just kept on.  Then this other couple was playing game on their phones.  Of course, they couldn't turn the volume down.  Bill was trying to read but he finally slam his book shut and slam in on the arm of the chair and when to a table where there was a puzzle to put together.  I sat there for a few more minutes, throwing daggers and saying out loud how rude.  Finally was able to find another seat open and moved.  I tell you what, I was ready to bitch slap someone or throw something at them.  Figured was better to move.  Oh, did I mentioned that I am on steroids?  Also, I was in bed around 12:30 last night and up at 4:30 this morning.  And I am still going.  Very tired but steroids will not let me sleep.  And it's11:30.  Count those hours of not sleeping.

I am having a mild rash again but it's like a sunburn.  No itching or hives.  This rash usually comes the last day of chemo and all those pills the day before.  I am not all that concerned about it since it happened two other times and a day or two it's gone.  Will watch it though.  And I am drinking tons of water to help flush it through.

Do not have to go back to the Cancer Center now for 14 days.  14 days if you count the weekends.  Will be nice not to have to worry about taking part of our days to go to the Center.  Glad to have a little break.  Talked about going somewhere but where?  Irma messed up a lot of the places we would have like to have gone to see.  Maybe next time I have a break we can go somewhere.

During Irma they closed the Orlando and the Sanford airports.  It was eerie not hearing the planes flying about us.  It still is one of my favorite Florida things to see and hear.  Last night I finally heard them and today saw and heard them.  Welcome back planes.

Quote:

Life always gives you a second chance.  It's called tomorrow.






Tuesday, September 12, 2017

Irma or Jose!

Cycle 1, week 3, day 1.  One more day to go and I will have completed a whole cycle.  This was only done one other time when Dr. Sarriera was preparing me for my transplant.  And it was with the Cyclophosphamide (Cyclops) too.  When tomorrow is over, I will have next week off of my Kyprolis drip and the Cyclops.  Still take the Dexamethasone (steroids).  Bill is so happy about that.  ;)  But one complete cycle!!!!  One complete cycle!!!!

Abby came in to do a preview before I saw Dr. Sarriera.  We discussed my concerns over the immunizations that I have to take soon.  I read in my med literature that I should not be immunized while on any of three drugs I take,  Dex, Kyprolis or Cyclophosphamide without discussing with my doctor.  She explained which one I could and could not get.  Will review this again closer to the time. I, at the request of Dr. Henley our family doctor, requested any X-ray, Pet scan, MRI that would have been a full body scan.  These are needed for her, Dr. Henley, to view for a pain I have been having on my right side.  This pain has been there for years and is progressing getting worse.  I have had various scans of my right side while living in PA over the years but nothing was every found.  Abby was concerned too as the possible cause.  Will post once we know more in a week or two.  Something that I needed to post to help me remember.  Not a post to concern anyone including me.  We discussed 2nd opinions of my treatment for Myeloma.  Again, something to remember but not considering at this time.  Abby asked how I was feeling.  Told her pretty good.  Get the highs, lows, bitchy days, can't sleep, very tired from the steroids.  Just a mild, light rash from the Kyprolis.  Also, probably get the I have had enough, time to sleep from the chemo drip and chemo.  Told her it was nice to sit there talking about all this without crying my eyes out like the last two visits to their office.  Listened to my heart.   Then Abby worried about a small red spot on my chin.  Nothing.  Went to get Dr. Sarriera.

Dr. Sarriera came in smiling.  Shook my hand and looked around for Bill.  Said he had never seen me in one of his rooms without Bill.  Was all good.  Bill had to find a bathroom.  LOL.  He review pretty much what I talked to Abby about.  Was very happy with the results of my labs so far.  3 Myeloma tests to be back in the next 3 days.  Light chains and M-spike.  He examined my head.  Was so happy to see the lumps in the radiation field had all disappeared.  The one I had found 2 days before radiation was over and not in the radiation field is gone.  No other lumps felt anywhere on my head now and I am saying forever!!!  He feels the Myeloma labs are going to come back good as well. We discussed the 4 to 6 month of this treatment, 3 week on, 1 week off monitoring me with labs and seeing him every 4 weeks.  Then Dr. Sarreria's plan for maintenance after these 4 to 6 cycles will be continuing the Dex but decreasing the dosage gradually and continuing the Kyprolis but only once a week.  This is his plan at this time as long as the 4 to 6 cycles continue to be working.  And, again, this will be the plan from where I see it!!!  Ended with, nice to see your smiling face and a not a crying face!

Have I told you all lately that I love my team, Dr. Sarriera, Abby, Desiree, Jessica.  The guy that checks me out.  I need to get his name.  The ladies on 5LP where I get my chemo drips.  The oncology nurses who administer my drips.  Their assistants.  The lab draw individuals and their assistants.  Thomas and his valet parking team.  The pharmacists and the team that works there.  I am blessed to have all these and more in my court.  The "and more" is my family, friends, friends of friends, all you reading this, my Myeloma support group, neighbors all praying for me or sending me positive energy.  There to hear me through it all.  Been a long year and 3 months battling this, up and down, up and down.  I will get there, one day at a time.  One day at a time knowing my treatment is working.  One day at a time to thank God for being with me along my path.  One day at a time to smile because I have yet another one day.  One day at a time to cry if needed.  One day at a time to reflect on life in a whole different prospective.  One day at a time to sew and that's a big one day at time thing for me!!  One day at a time to have Bill as my wonderful care giver.  One day at a time! One day at a time!

Be right back.  Time to take the 11 Cyclophosphamide (Cyclops, chemo pill) to end my 29 pill popping day.  Done.  Glad I am not one who has problems with swallowing pills especially capsules. Done with those until week after next.

Want to end this with news of my beautiful, pregnant Desiree.  I am sure several of you want to know too.  Desiree was not in the office today.  She just was tired.  Can't imagine being so pregnant with twins, so close to her delivery date and have to deal with a hurricane.  Babies are still in tact but she needed to have a rest day.  She informed Abby that she will definitely be in on Wednesday.  I hope to be able to see Desiree at least once more before she delivers.  Her delivery date is schedule for Sept 28th.  Abby or Jessica told us today that once she hits 36 weeks, her doctor will not wait for the delivery date if she goes in to labor before then.  We actually ran in to Desiree last week and shared the elevator with her.  Of course Bill teased her and told her there was a weight limit on elevators.  We talked a bit.  We discussed the possibilities of where and when Irma will hit Florida.  And the possibility of her having the twins.  That ended with Desiree saying very strongly, "I will not name these babies Irma and Jose!"  Love my Desiree!!

Quote:

I am not a burden.  I have a burden which is too heavy to carry on my own.






Tuesday, September 5, 2017

Water. Generator.

Today was day 1 of week 2 of cycle 1.  Got that?  I think I do now.  Think I messed it up in a previous post.  One more week of cycle 1 and I have a week off.  Well, still have to do the 10 Dex pills on Tuesday.  No relief from those steroids.  Tomorrow I get my Kyprolis and my Zometa.  Saves us from running to the Cancer Center again on Friday.

My appointment was at 9:30 this morning.  Not a morning person you know.  So we had to leave by 8:30.  Was a back up of traffic on Eagle Circle turning on to Red Bug.  Once we got through that, we had all green lights.  Bill said this is just too good to be true.  Well, he was right.  Once we got on Horatio, backed up for several miles to our turn on to 17/92.  And then a back up on 17/92 till we got past Lee Road that everyone wanted to turn on so they could hit I4.  I, of course, was very stressed.  I do not like to be late for anything.  You tell me to be there at 9:30, I like to be there by 9:15 at the latest.  Well, I do have to tell you that when I worked, I was to be there by 8 and was dragging myself in the door at 8 or a bit after.  That's another story.  ;)  Michelle was texting me to help me settle down some.  Thanks Michelle.  We got to the Cancer Center around 9:10, parked and was on the 5th floor treatment area at 9:15.

I was called back around 9:30 for my labs, vitals and my line placement in my port.  Didn't hurt as bad.  Still healing Kara said.  Lab nurse.  Went back to the waiting room to wait for my room to be ready.  Most times, we go right to the room once labs and placement is done.  Was to have Christina today in one of her rooms, 12-15.  Finally around 10:15 we were told by receptionist to go to room 9 only to find our Patrice was our oncology nurse again.  She was the one that we had last Tuesday; that long, long day.  She kept apologizing it was taking so long.  Really like her.  She even came over to our room on Wednesday to see how I was doing.

Patrice come in the room to say hi, ask some questions and say she hoped not to be as long today.  She kept her promise.  Patrice came back in and said my lab numbers were really good.  Even my bilirubin was really down.  Yippee.  No need to contact doctor.  Pharmacy was ready to mix my dosage and would be up soon.  Got the mix and started the drip of Kyprolis.  Finished that and did the saline drip.  Done and out around 11.

Had a low grade headache most of the afternoon and here tonight.  Also, had some aches in my left leg today.  Took the 11 Cyclophosphamide chemo pills around 9:30 PM.  So my 29 pills have been taken!!!

As you know, hurricane Irma may head our way.  Not 100% definite.  We are watching.  Mom is visiting Aunt Betts.  She would be very safe there BUT she on had one week of her meds with her because that's what the med techs gave her since she was only signing out for a week.  So we will need to go get her before all this.  Mom will be pretty safe in her assisted living facility because they are all set for hurricanes.  A lot safer there than here with me and Bill or at Kristi's.  And they have generators.

There is no water in site.  Gery finally found some at Home Depot, really, and bought us 5 cases today.  Bill and I have gassed up the car and plan to stop at Sam's and Publix tomorrow after my treatments and get some stuff to make chili to freeze, manwhich to freeze and maybe get some chicken.  We have plenty of charcoal.  Made a few plans with Michelle and Gery.  They have a generator.  None of those in site either.  We decided we are going to buy one in the winter this year.

Quote:

This is related to my journey.  Hurricane Irma is just a storm we pray doesn't happen.

Once the storm is over, you won't remember how you made it through, how you managed to survive. You won't even be sure that the storm is really over.  One thing is certain.  When you come out of the storm, you won't be the same person that walked in.





Monday, September 4, 2017

Irma!

Weekend was a pretty feel good weekend.  Steroids all out of my system.  And just in time to take 10 of them again tomorrow along with my chemo drip and 11 chemo pills.  Tomorrow, a day of 29 pills.  I know, I know this is necessary but I can complain if I want.  ;)

Wanted to update on my neuropathy.  Although it's not at all like last year this time where I was walking the floors for hours, not sleeping because of it and just down right miserable from it.  My finger tips are still numb and tingly.  Still drop things sometimes because I think I have a hold on it but don't.  My toes are also numb feeling and tingly.  The balls of my feet still feel like they are swollen but they aren't and when I walk on them, it feels like I am walking on golf balls.  (Even though I never walked on a golf ball but I am sure that's how it would feel).  Still take the Lyrica 3 times a day for my neuropathy.  Again, nothing like last year but still there.  I don't think the nerve damage that was done will ever repair itself.

My hair is growing in again except for the large area where the radiation hit.   This area is a bit bigger than my hand with my fingers slightly spread.  Goes from the top of my head to below my right ear and spread out both towards the front and the back of my head.  Not pretty and not fun to look at.  I wear a hat of some type most of the time.  We knew there was a possibility the radiation treatments would cause the hair not to grow in but prayed it would.  The radiation treatments were necessary and we choose that option knowing the side effects.  I do have a nice wig but when I put it on, it is a reminder of my disease.  I will eventually wear it I am sure but right now, not doing it.  Just wear one of my many hats.  Speaking of hats, Sandy brought me a one along when they were down two weeks ago and I just got one in the mail from Jean.  Both are really nice.  Thinking time to order another two or three to add more to my stash.

The chemo drug, Cyclops, I am on also has a side effect of temporary hair loss.  Usually about 3 to 6 weeks after the start of therapy, hair loss may begin.  Since chemo drugs do not know the difference between a cancerous cell and the normal cells, it will kill all cells that are dividing rapidly.  The normal cells will grow back and be healthy but in the meantime, side effects occur.  The normal cells most commonly affected by chemo are the blood cells, cells in the mouth, stomach and bowel and the hair follicle.  The hair will grow back after treatment is complete.  My treatment is scheduled out until early next year.  :(

Tomorrow starts day 1 of cycle 2.  Tomorrow will be a long day at the Cancer Center.  Labs, waiting on lab tests, doctor approval if any of my numbers are off, pharmacy mixing the Kyprolis at a strength depending on my lab numbers, oncology nurse administering drip and saline.  Hope it's not a long as last week.  And, my appointment is at 9:30.  Ugh.  Like my 12:30 and later appointments.

Florida has been declared as a state of emergency already.  Irma.  We have been watching this for over a week now and it doesn't look too good for Florida.  Michelle and Gery went out today to look for a generator, water and batteries.  They came home with some batteries.  We hope to stop tomorrow after my treatment to stock up on some water, if we can find some.  Meanwhile, I am praying this turns and goes back out to sea.

Quote:

A river cuts through a rock not because of its power but because of its persistence.