Tampa day 2 & 3!

As you all know I did not blog yesterday.  Could that be I was all doped up because of the Pet Scan?   First person we met with yesterday (Tuesday) was Dr. Booth-Jones, phycologist.  Her assistant asked a bunch of questions of me and Bill.  Then sent Bill out of the room and did some tests with me.  Tests like word memory, sentence memory, drawing, connect the numbers  Yes, you read that right, connect the next numbers.   First time just connect 1 - 25.  Make sure you actually touch the number.  Then flip over.  The numbers are yellow and pink. So 1 number 1 in yellow and 1 number 1 in pink all the way through to 25.   Starting at the yellow number 1 connect it to the pink number 2, to the yellow number 3, to the pink number 4.  All the way to 25.  Yellow, pink, yellow, pink!   Called Bill back in and she went to discuss me with the Doctor.  Both came back, we chatted a bit.  Ask how I felt about the transplant and told her the truth - I am scared!   She related with that.  All in all I am normal (glad some of you can't make comments on that one).  Next to talk with a social worker.  Basic same questions.  Gave some tips on hotels in the area they have contracts with if needed.  Gave us info on what to expect over the first few days forward.  Will be seeing her a lot more. Next was Kelley, transplant coordinator nurse specialist.  Went over consent forms, then gave me a calendar of the start to the end of the transplant.  Will share those dates later.  After Kelley, we waited an hour and a half to see a PA.  I was getting anxious because I that appt for the pet scan at 3. My blood pressure was up when they took it.  Finally PA saw us. Reviewed tests so far. All looked good.  I was concerned about the pulmonary tests because I had some red marks on the test.  She said not to worry.  Nothing to stop the transplant.  Then the dreaded Pet Scan.  Checked in and girl said it was a 2 1/2 hrs test.  I asked if Bill were allowed.  No. First they put radiation in you via a line in you arm that stays there till done. Then you sit for 90 mins till gets through body.  Then the pet scan.  Don't remember a lot of it.  Just remember her telling me to put my hands above my head.  Put a wash cloth over my eyes.   And it was over.  Really don't remember much else from there on out.  Bill said I navigated him back to the hotel.  Took me to the room around 7:30 and I was gone the rest of the night till about 3:30 this morning.  Got up finally around 6.  Packed, checked out and back to Moffitt for final test, bone marrow biopsy by 8 AM.   Really hungry.  Hadn't eaten since 10 AM Tuesday morning.  Bill did get me food last night but couldn't wake me up to eat.and couldn't eat after midnight last night because of the biopsy.   Prepped for biopsy.  Put to sleep.  Woke up asking for the little man.  This was the last person I saw before I went to sleep.  You know the little man who put stuff up my noise (breathing tube) and used the fat needle to put stuff in my IV to make me sleep.  Nurse just laugh.  Brought Bill back, got dressed and Bill pushed me out in a wheel chair.  Nurse told me that they all are going to call that guy, the little man now.  😂   A lot of information, a lot of things to prepare yet but we are moving on the tracks to eventually my happy place again.  

Made it home safely.  Both exhausted.  Gery and Michele came over for about 20 minutes to say hi and welcome home.  They took care of Tommy and the pool for us.  Thanks and thanks for the Welcome Home sign!!!  Great neighbors!  

Quote:

Zero in on your target and go for it!