Chemo pills and steroid pills take ##!
Same ole night like the previous nights. Does ceramic tile show a pattern of where you walked like carpet does? I have a walking pattern that I go each night to relieve my pain. Funny how walking eases it. Swing those arms, lift those arms, shake those hands, 7, 6, 5, 4, 3, 2, 1! Come on, count with me. My little ritual several times each night to ease pain. Then lay down in bed. Nope. Not working. Sit in lounge chair with recliner back. Only way I can get a little sleep. Then up, 7, 6, 5, 4, 3, 2, 1. Again. Desiree said it should start easing soon. Soon would be now. Maybe I can get her to walk with me.
Velcade done per Dr. Sariera till (?) but it's my Friday 22 pill day to include 10 steroids and 7 chemo pills (cyclophosphamide or as I call them, Cyclope pills). I continue on this Friday schedule until the 14th of October. Will the steroids keep me up tonight or tomorrow or when? It's already 10:30.
Quote:
I'm doing the dance called life!
Friday, September 30, 2016
Thursday, September 29, 2016
Happy Anniversary!
Was up all night but about 3 hours last night. The pain was excruciating and nothing eased it. Couldn't lay in bed, couldn't sit straight up, just walked the floors. Feet, legs, hands and arms. Finally emailed Desiree around 1:30 AM to talk to Dr. Scarriera as soon as she could once they got in to see what we could do about this. Needed rest, needed rid of some pain, needed to relax, needed to be me. If Velcade injections are causing this, what can be done to stop the neuropathy? Desiree is so good. Got an email back saying Velcade injections to be stopped immediately per Dr. Sarriera! Music to my ears. Continue to take my 7 chemo pills and 10 steroids on Fridays though. Not sure how long the neuropathy will take ease up and disappear but knowing this is in site sure will help. Figure didn't start overnight so probably won't go away overnight. But just go away please!
Sandy and I did a little shopping this morning. Not like we used to shop. Then we went to Thai Basil for an anniversary celebration tonight with Sandy and Denny. Nice to have them here.
Quote:
No matter how dark the night, it must be followed by dawn!
Was up all night but about 3 hours last night. The pain was excruciating and nothing eased it. Couldn't lay in bed, couldn't sit straight up, just walked the floors. Feet, legs, hands and arms. Finally emailed Desiree around 1:30 AM to talk to Dr. Scarriera as soon as she could once they got in to see what we could do about this. Needed rest, needed rid of some pain, needed to relax, needed to be me. If Velcade injections are causing this, what can be done to stop the neuropathy? Desiree is so good. Got an email back saying Velcade injections to be stopped immediately per Dr. Sarriera! Music to my ears. Continue to take my 7 chemo pills and 10 steroids on Fridays though. Not sure how long the neuropathy will take ease up and disappear but knowing this is in site sure will help. Figure didn't start overnight so probably won't go away overnight. But just go away please!
Sandy and I did a little shopping this morning. Not like we used to shop. Then we went to Thai Basil for an anniversary celebration tonight with Sandy and Denny. Nice to have them here.
Quote:
No matter how dark the night, it must be followed by dawn!
Wednesday, September 28, 2016
Will this week end?
Last nights sleep was okay. Was awake by 5:30 and had to get up to walk off the foot pain. Hands and arms are still really achy, painful, numb. I am now taking 2 Gabapentine a day. Working up to 3. Did email Desiree my symptoms. Said she would talk to Dr. Sarriera tomorrow. Let me sleep tonight.
Nice dinner with Sandy and Denny to end the day. So love they are here but feel bad it's a horrible week for me. Next year this time!!!
Quote:
You won't be the person you were before cancer but that's not a bad thing!
Last nights sleep was okay. Was awake by 5:30 and had to get up to walk off the foot pain. Hands and arms are still really achy, painful, numb. I am now taking 2 Gabapentine a day. Working up to 3. Did email Desiree my symptoms. Said she would talk to Dr. Sarriera tomorrow. Let me sleep tonight.
Nice dinner with Sandy and Denny to end the day. So love they are here but feel bad it's a horrible week for me. Next year this time!!!
Quote:
You won't be the person you were before cancer but that's not a bad thing!
Tuesday, September 27, 2016
Northerners are here!
Was able to sleep last night all night. About 10:30 till 8:30 this morning (just a few bathroom interruptions). Thinking maybe the Gabapentine helped. This morning, I had just some miner pain in my feet. Hands still painful but not as bad as yesterday. Did a little running around with Bill for a bit. Still get tired really quick. But that is a side effect of each of my meds so makes sense. Nap did me good.
Then we got company. Some northerners. Sandy and Denny are in town. Yeah!!! They came in yesterday. We couldn't pick them up at airport so they got to experience Uber! Got to see my not a good day day. Hoping now we can make some plans together as long as these pills keep working on my neuropathy. I know I am no fun to be around when I am having one of my bad days. But I think Sandy can handle it. Nice to have her with me for a few days. She is full of hugs from home!
Quote:
Cancer takes away my some of my physical abilities but it can't touch my mind and my soul!
Was able to sleep last night all night. About 10:30 till 8:30 this morning (just a few bathroom interruptions). Thinking maybe the Gabapentine helped. This morning, I had just some miner pain in my feet. Hands still painful but not as bad as yesterday. Did a little running around with Bill for a bit. Still get tired really quick. But that is a side effect of each of my meds so makes sense. Nap did me good.
Then we got company. Some northerners. Sandy and Denny are in town. Yeah!!! They came in yesterday. We couldn't pick them up at airport so they got to experience Uber! Got to see my not a good day day. Hoping now we can make some plans together as long as these pills keep working on my neuropathy. I know I am no fun to be around when I am having one of my bad days. But I think Sandy can handle it. Nice to have her with me for a few days. She is full of hugs from home!
Quote:
Cancer takes away my some of my physical abilities but it can't touch my mind and my soul!
Monday, September 26, 2016
Just like the song!
Did get some sleep last night but was up off and on with the nagging, tingling, aching, painful feet, hands and arms. Especially the hands. Finger tips are so numb and some feel like they are bruised. Finally at 5:30 this morning I emailed Desiree and told her to order the prescription for Gabapentin she told me about several days ago. And the fatigue today was awful. Just no energy. Just couldn't stay on top of the day. Had my Velcade shot around 1. Been dozing off and on all day but can't fall in to a nice sleep. Finally took the Gabapentin for the neuropathy. Sure hope it kicks in because I am not liking the way I feel today at all. I would put this day up there as the worse!! And as the song goes - I had a bad day!!!
Quote:
You have to fight through the bad days to earn the best days of your life!
Did get some sleep last night but was up off and on with the nagging, tingling, aching, painful feet, hands and arms. Especially the hands. Finger tips are so numb and some feel like they are bruised. Finally at 5:30 this morning I emailed Desiree and told her to order the prescription for Gabapentin she told me about several days ago. And the fatigue today was awful. Just no energy. Just couldn't stay on top of the day. Had my Velcade shot around 1. Been dozing off and on all day but can't fall in to a nice sleep. Finally took the Gabapentin for the neuropathy. Sure hope it kicks in because I am not liking the way I feel today at all. I would put this day up there as the worse!! And as the song goes - I had a bad day!!!
Quote:
You have to fight through the bad days to earn the best days of your life!
Sunday, September 25, 2016
Fall festival!
Was able to go to bed around 2:30 this morning and sleep till around 7. Hope the steroids wear off tonight. Tomorrow is another chemo injection. Having some trouble with my feet and hands today. Damn neuropathy. Just trying to deal with it.
Went to a fall festival with Michelle. Well, it was pretty dang hot for fall. The humidity was horrid. It's suppose to be dropping here soon. The leaves are dropping so why not the humidity?
Pretty quiet day for me. Pretty calm day for me. Pretty thankful day for me. Thankfull for all my family and friends sending me prayers, hugs, positive energy, notes, textes, cards, emails, books and most of all hope!!! You all are very special.
Quote:
Be around people who inspire, challenge and make you feel better!
Was able to go to bed around 2:30 this morning and sleep till around 7. Hope the steroids wear off tonight. Tomorrow is another chemo injection. Having some trouble with my feet and hands today. Damn neuropathy. Just trying to deal with it.
Went to a fall festival with Michelle. Well, it was pretty dang hot for fall. The humidity was horrid. It's suppose to be dropping here soon. The leaves are dropping so why not the humidity?
Pretty quiet day for me. Pretty calm day for me. Pretty thankful day for me. Thankfull for all my family and friends sending me prayers, hugs, positive energy, notes, textes, cards, emails, books and most of all hope!!! You all are very special.
Quote:
Be around people who inspire, challenge and make you feel better!
Saturday, September 24, 2016
There's a man walking in our yard!
Slept pretty good last night and was pain free of my neuropathy. No pain pill needed. Yeah. Hope tonight is the same. Was up at 4:30 AM because of the steroids though. Been up most of the day since other that a small nap. Anyway, seems my weepiness from the steroids started a little earlier than usual. One of those mornings that I wanted to do was cry. Was dropping stuff, a little queasy in my stomach, didn't feel much energy, just whatever. So told Bill I was going to get a shower, my crying place. Big hugs from him and off I went feeling sorry for myself for whatever and crying my heart out. About 10 minutes in my bedroom, I decided to open the shutters and let some light in hoping to calm myself down. When what do my crying eyes did appear but a man walking out of the side of our house carrying a pipe heading to a pick up truck. Hollared for Bill and he went to the front door and went out. On the way out, he hollared to me, it's Gery getting the tires to take away. OMG!! Well, that stopped the tears and started the laughter. Thanks Gery. You were at the right place at the right time!!! Sent to help me. Bill said he told him that everyone who thinks living with a woman who has PMS is nothing compared to a woman on steroids!!! 10 of them at once to be exact.
Then around 11 off to take the girls home. Kristi and I picked up mom, went to lunch, shopped at Kohl's and Dollar Tree (the store with the Freen sign Didi - my Kristopher used to say). How does someone who has worked around dishes for over 20 years not know the difference between a 4 piece place setting and a service for 4? Do not ask! Second laughter to ward of the crying jags for today. Third laughter of the day, Oct 5th - Friday, not. Do not ask again! Kristi and I will not own up to any of this.
My reason for this is to say, all in all I had a decent day. All ending with a nice long call from my sister Cheri. A few laughs there too.
Quote:
You don't always have to hold yourself together!
Slept pretty good last night and was pain free of my neuropathy. No pain pill needed. Yeah. Hope tonight is the same. Was up at 4:30 AM because of the steroids though. Been up most of the day since other that a small nap. Anyway, seems my weepiness from the steroids started a little earlier than usual. One of those mornings that I wanted to do was cry. Was dropping stuff, a little queasy in my stomach, didn't feel much energy, just whatever. So told Bill I was going to get a shower, my crying place. Big hugs from him and off I went feeling sorry for myself for whatever and crying my heart out. About 10 minutes in my bedroom, I decided to open the shutters and let some light in hoping to calm myself down. When what do my crying eyes did appear but a man walking out of the side of our house carrying a pipe heading to a pick up truck. Hollared for Bill and he went to the front door and went out. On the way out, he hollared to me, it's Gery getting the tires to take away. OMG!! Well, that stopped the tears and started the laughter. Thanks Gery. You were at the right place at the right time!!! Sent to help me. Bill said he told him that everyone who thinks living with a woman who has PMS is nothing compared to a woman on steroids!!! 10 of them at once to be exact.
Then around 11 off to take the girls home. Kristi and I picked up mom, went to lunch, shopped at Kohl's and Dollar Tree (the store with the Freen sign Didi - my Kristopher used to say). How does someone who has worked around dishes for over 20 years not know the difference between a 4 piece place setting and a service for 4? Do not ask! Second laughter to ward of the crying jags for today. Third laughter of the day, Oct 5th - Friday, not. Do not ask again! Kristi and I will not own up to any of this.
My reason for this is to say, all in all I had a decent day. All ending with a nice long call from my sister Cheri. A few laughs there too.
Quote:
You don't always have to hold yourself together!
Friday, September 23, 2016
Jell-o Creations! Dirt Cups!
Been two weeks since last Velcade chemo shot. Today was the beginning of my last cycle of Velcade before preparing for my transplant. I will get 4 shots then no more until, if any, after transplant. Not sure yet what my maintenance drug will be. So shots today the 23rd, 26th, 30th and 3rd. Then Zometa drip (bone strengthener) on the 7th. Also, took my 10 steroids and 7 chemo pills along with daily vitamins and baby aspirin, my every Friday regulars. Not sure if if I have to continue with the treatment steroids and the chemo pills once the Velcade stops. Have to talk to the transplant coordinator, Kelley. My oncologist's office and transplant office need to mesh my daily routine together for me once the Velcade is complete. Had a wonderful nurse today. Christina. She was so cheerful, funny and caring. Her shot in the fluff was by far the quickest and lest painful. We'll compare the bruise in a few days. Lol. Bill told her that is how we compare my nurses, by the size of the bruise.
Last night was another night of neuropathy pain. Took pain pill earlier, slept for about 2 hours. The up about 2 hours walking off and on, stretching and sitting in recliner. The was able to sleep 3 hours and went back in bedroom. Got another 2 hours. Hope tonight isn't the same.
Was able to finally have the girls over to spend the night. Was lightly napping and heard whispers of - hi Didi. They were peeking in my door. Told them to join me and we laid there and talked a bit. Better than chemo meds. Told Sasha her voice and laughter was sounding like a teenager. Then had to explain that wasn't a bad thing. 😏 Got up and girls made Jell-o Creations Dirt Cups complete with worms (gummy) while Bill did chicken breasts and legs on the grill for dinner. As much as we wanted to, we didn't get the cups until after dinner. Bill and I didn't eat ours. Well, I must admit I did take a few bites if my. Chocolate you know. Not great for cancer but craved by me. Oh, we had to do some adding, subtracting, multiplication and division to see have to use my 18 ounce cups verses 5 ounce cups requested in directions. Girls and I figured it out. Kristi will be proud of us. And I used the old days math. 😏 Then Ellie said, just cut the cups to the right size! 😙
Quote:
Don't count the days, make the days count!
Been two weeks since last Velcade chemo shot. Today was the beginning of my last cycle of Velcade before preparing for my transplant. I will get 4 shots then no more until, if any, after transplant. Not sure yet what my maintenance drug will be. So shots today the 23rd, 26th, 30th and 3rd. Then Zometa drip (bone strengthener) on the 7th. Also, took my 10 steroids and 7 chemo pills along with daily vitamins and baby aspirin, my every Friday regulars. Not sure if if I have to continue with the treatment steroids and the chemo pills once the Velcade stops. Have to talk to the transplant coordinator, Kelley. My oncologist's office and transplant office need to mesh my daily routine together for me once the Velcade is complete. Had a wonderful nurse today. Christina. She was so cheerful, funny and caring. Her shot in the fluff was by far the quickest and lest painful. We'll compare the bruise in a few days. Lol. Bill told her that is how we compare my nurses, by the size of the bruise.
Last night was another night of neuropathy pain. Took pain pill earlier, slept for about 2 hours. The up about 2 hours walking off and on, stretching and sitting in recliner. The was able to sleep 3 hours and went back in bedroom. Got another 2 hours. Hope tonight isn't the same.
Was able to finally have the girls over to spend the night. Was lightly napping and heard whispers of - hi Didi. They were peeking in my door. Told them to join me and we laid there and talked a bit. Better than chemo meds. Told Sasha her voice and laughter was sounding like a teenager. Then had to explain that wasn't a bad thing. 😏 Got up and girls made Jell-o Creations Dirt Cups complete with worms (gummy) while Bill did chicken breasts and legs on the grill for dinner. As much as we wanted to, we didn't get the cups until after dinner. Bill and I didn't eat ours. Well, I must admit I did take a few bites if my. Chocolate you know. Not great for cancer but craved by me. Oh, we had to do some adding, subtracting, multiplication and division to see have to use my 18 ounce cups verses 5 ounce cups requested in directions. Girls and I figured it out. Kristi will be proud of us. And I used the old days math. 😏 Then Ellie said, just cut the cups to the right size! 😙
Quote:
Don't count the days, make the days count!
Thursday, September 22, 2016
Velcade tomorrow.
Another night of up and down, on the couch, in bed, on the couch, in bed. Tonight I will take a pain pill early and not wait till I can't take it anymore. Keep thinking I can get through this. I will get through this. Keep thinking, work towards the transplant. That's what I need to do. That's what I want to do. Keep thinking, seven months from now, next year this time, 5 years from now, 10 years from now. Keep thinking, I can keep thinking, need to keep thinking.
Kerri and Paul made it home last night without stopping over anywhere. Got home around 10:30 CO time. Long day of driving. But worth it they said to be able to spend time with me and Bill. 😍
Quote:
Cancer doesn't have a face until it's yours!
Another night of up and down, on the couch, in bed, on the couch, in bed. Tonight I will take a pain pill early and not wait till I can't take it anymore. Keep thinking I can get through this. I will get through this. Keep thinking, work towards the transplant. That's what I need to do. That's what I want to do. Keep thinking, seven months from now, next year this time, 5 years from now, 10 years from now. Keep thinking, I can keep thinking, need to keep thinking.
Kerri and Paul made it home last night without stopping over anywhere. Got home around 10:30 CO time. Long day of driving. But worth it they said to be able to spend time with me and Bill. 😍
Quote:
Cancer doesn't have a face until it's yours!
Wednesday, September 21, 2016
24 hour wine collection!
Last night was another night to take a pain pill for the neuropathy. Contacted Desiree this morning. They are offering another med that may help. Don't know if I want to do that. Have to make a decision.
Today I got the schedule for my 3 days of testing from Moffitt Transplant Center. Full three days starting the 17th. Not sure if we will stay in Tampa or head home each day. On the 16th though they had listed a 24 hour urine collection. I have some questions on several things on the schedule that I wrote down for when I call. When I reviewed them with Bill to see if he had any questions, I saw I had written 24 hour wine collection instead of 24 hour urine collection. I know TMI but I said in the beginning there may be some things I would be sharing that could be TMI. LOL. We had a good laugh over that!!
Kerri and Paul are almost home. Decided to make it there tonight and not stop. Long, long trip for them. It's about another 3 hours. They are in Colorado. Should be home around 10:30 their time. Be glad to get that text saying they are home!!
Quote:
Asking for help with pain is not a sign of weakness!
Last night was another night to take a pain pill for the neuropathy. Contacted Desiree this morning. They are offering another med that may help. Don't know if I want to do that. Have to make a decision.
Today I got the schedule for my 3 days of testing from Moffitt Transplant Center. Full three days starting the 17th. Not sure if we will stay in Tampa or head home each day. On the 16th though they had listed a 24 hour urine collection. I have some questions on several things on the schedule that I wrote down for when I call. When I reviewed them with Bill to see if he had any questions, I saw I had written 24 hour wine collection instead of 24 hour urine collection. I know TMI but I said in the beginning there may be some things I would be sharing that could be TMI. LOL. We had a good laugh over that!!
Kerri and Paul are almost home. Decided to make it there tonight and not stop. Long, long trip for them. It's about another 3 hours. They are in Colorado. Should be home around 10:30 their time. Be glad to get that text saying they are home!!
Quote:
Asking for help with pain is not a sign of weakness!
Tuesday, September 20, 2016
Heading west?
So tired last night. Figured I could go to bed at 9:30 and slept most of the night. Not! Was up at 11:30. Feet, legs and arms throbbing. Took 2 pain pills and fell asleep in the lounge chair. Around 3 this morning, I felt that someone was staring at me. Tommy! Was able to go to bed and sleep until 6:30.
My Bear and Paul headed back to CO at 8 AM this morning. They left with a pick up full of things that we have been saving for them for a while. Last I heard, they were still driving. In TN. Was such a nice visit even though short. Kerri and I both needed this! Medicine for our hearts.
Quote:
Your life can change in a minute!
So tired last night. Figured I could go to bed at 9:30 and slept most of the night. Not! Was up at 11:30. Feet, legs and arms throbbing. Took 2 pain pills and fell asleep in the lounge chair. Around 3 this morning, I felt that someone was staring at me. Tommy! Was able to go to bed and sleep until 6:30.
My Bear and Paul headed back to CO at 8 AM this morning. They left with a pick up full of things that we have been saving for them for a while. Last I heard, they were still driving. In TN. Was such a nice visit even though short. Kerri and I both needed this! Medicine for our hearts.
Quote:
Your life can change in a minute!
Monday, September 19, 2016
Next steps!
Was a good nights sleep most of the night. Had a few problems with my leg and arms early this morning. Neuropathy.
Today I got a call that we have been waiting on regarding my transplant procedure. A call that made me cry a bit afterwards because it made me feel scared. Glad Kerri and Mom were here to help me calm down. Still very anxious inside about it and will be for awhile.
Kelley, the Moffitt transplant coordinator, called to tell me that Dr. Ochoa reviewed my lab results and Dr. Sarriera's notes from our last appointment and concurs with Dr. Sarriera decision to proceed with the stem cell transplant. Part of the reason to procedure now is because of my neuropathy problems and my allegic reactions to Revlimid (as this is a maintenance drug). Here are few dates that I know now. I will start my chemo injections as planned on the 23 of September. Last one will be 14th of October. Will be scheduled for 3 days of testing at Moffitt - labs, EKG, bone marrow biopsy, transplant classes etc. Oct 17th, 18th and 19th. Meet with Dr. Ochoa Oct 25th to review test results and sign forms for permission to proceed. November 4 - November 8, shots daily to condition cells. About 2 days later, removal of cells. High dose chemo. Several days later, transplant. Will be getting a calendar from Kelley soon spelling all this out for us. Again, this is something we have been waiting for but even so, it's scary to Bill and I. We will work through it all but it's okay to be scared for a bit.
Quote:
Cancer is just a chapter in my life not my whole story!
Was a good nights sleep most of the night. Had a few problems with my leg and arms early this morning. Neuropathy.
Today I got a call that we have been waiting on regarding my transplant procedure. A call that made me cry a bit afterwards because it made me feel scared. Glad Kerri and Mom were here to help me calm down. Still very anxious inside about it and will be for awhile.
Kelley, the Moffitt transplant coordinator, called to tell me that Dr. Ochoa reviewed my lab results and Dr. Sarriera's notes from our last appointment and concurs with Dr. Sarriera decision to proceed with the stem cell transplant. Part of the reason to procedure now is because of my neuropathy problems and my allegic reactions to Revlimid (as this is a maintenance drug). Here are few dates that I know now. I will start my chemo injections as planned on the 23 of September. Last one will be 14th of October. Will be scheduled for 3 days of testing at Moffitt - labs, EKG, bone marrow biopsy, transplant classes etc. Oct 17th, 18th and 19th. Meet with Dr. Ochoa Oct 25th to review test results and sign forms for permission to proceed. November 4 - November 8, shots daily to condition cells. About 2 days later, removal of cells. High dose chemo. Several days later, transplant. Will be getting a calendar from Kelley soon spelling all this out for us. Again, this is something we have been waiting for but even so, it's scary to Bill and I. We will work through it all but it's okay to be scared for a bit.
Quote:
Cancer is just a chapter in my life not my whole story!
Sunday, September 18, 2016
East coast pizza please!
Went to bed around 1 this morning and slept till 6:30. Tired but not able to sleep. Steroid coming down day. I am thinking I will be able to sleep tonight. Other than the numbness in my fingers and feet, had a pretty good day.
Mom, can we please get an east coast pizza for lunch? Kerri's request. Ordered 2 XL pizzas and we only have 5 pieces left. 1 XL pepperoni and 1 XL bacon. Loving Vinzo's pizza. Picked up Mom so she could spend the day with Kerri and Paul too. Over to Kristi and Matt's for dinner. Don't like this getting dark early.
Thinking my pretty good day has something to do with me having both my daughters with me. Thinking my not thinking about my cancer today had something to do with me having both my daughters with me. Thinking that both of my daughters are a big part of my therapy whether here in person or here in spirit. Daughters, look out cancer!!
Quote:
Wherever you go no matter what the weather, bring your own sunshine!
Went to bed around 1 this morning and slept till 6:30. Tired but not able to sleep. Steroid coming down day. I am thinking I will be able to sleep tonight. Other than the numbness in my fingers and feet, had a pretty good day.
Mom, can we please get an east coast pizza for lunch? Kerri's request. Ordered 2 XL pizzas and we only have 5 pieces left. 1 XL pepperoni and 1 XL bacon. Loving Vinzo's pizza. Picked up Mom so she could spend the day with Kerri and Paul too. Over to Kristi and Matt's for dinner. Don't like this getting dark early.
Thinking my pretty good day has something to do with me having both my daughters with me. Thinking my not thinking about my cancer today had something to do with me having both my daughters with me. Thinking that both of my daughters are a big part of my therapy whether here in person or here in spirit. Daughters, look out cancer!!
Quote:
Wherever you go no matter what the weather, bring your own sunshine!
Saturday, September 17, 2016
Who is ringing my doorbell?
Okay these steriods allowed me go to sleep at 4 AM this morning and sleep until 8. Then allowed me a 1 1/2 hour nap this afternoon. And here I now sit at 10:30 trying to be tired so I can go to bed. Busy day cause I had energy. Made some crab soup and stuff for nachos/tacos cause Kristi and the girls were coming over for dinner tonight. Unfortunately Matt is sick so he had to stay home. Sent him some soup though. BUT little did I know who else would be here for dinner. Door bell rings around 4. I knew Michelle was stopping over but she doesn't ring my doorbell. The people a few houses up was having and party and I thought maybe they decided to invite us. Saw a black truck parked up by our driveway and thought maybe they just wanted to let us know they were parking there and going up to the party. Looked our the side panel of our door and couldn't believe it. There stood Kerri and Paul. Opened the door and was just flabbergasted so I shut it and locked it. Then opened it and got the biggest, needed hug from my Bear as Paul took pictures. I was still in disbelief. And I am still thinking it is a dream. 1700 miles they drove since last Thursday. 1700 miles from both of my grandsons homecoming dance. 1700 miles from the other 4 grandkids. 1700 miles from their life of scrapping, horses, dogs, cats, cows, pigs. Now that's what I call positive energy delivered to my door. Another big part of my reason for fighting this ugly thing called cancer. My husband, my daughters, son-in-laws and my grandkids are my reasons!!! The fear is mine and the pain is mine but knowing that my family and friends are there for me with hugs, prayers, positive energy, to listen to me whine through texts and phone calls, read my sometimes laborious blog, send me encouragement and mainly just caring, gives me courage, faith and strength. Today a big part of my needed courage showed up at my door. Today I got the other hugs I needed since the day I heard the words multiple myeloma. Take that cancer!!!
Quote:
Stand in your light and shine brightly because that's how you defeat the darkness!
Okay these steriods allowed me go to sleep at 4 AM this morning and sleep until 8. Then allowed me a 1 1/2 hour nap this afternoon. And here I now sit at 10:30 trying to be tired so I can go to bed. Busy day cause I had energy. Made some crab soup and stuff for nachos/tacos cause Kristi and the girls were coming over for dinner tonight. Unfortunately Matt is sick so he had to stay home. Sent him some soup though. BUT little did I know who else would be here for dinner. Door bell rings around 4. I knew Michelle was stopping over but she doesn't ring my doorbell. The people a few houses up was having and party and I thought maybe they decided to invite us. Saw a black truck parked up by our driveway and thought maybe they just wanted to let us know they were parking there and going up to the party. Looked our the side panel of our door and couldn't believe it. There stood Kerri and Paul. Opened the door and was just flabbergasted so I shut it and locked it. Then opened it and got the biggest, needed hug from my Bear as Paul took pictures. I was still in disbelief. And I am still thinking it is a dream. 1700 miles they drove since last Thursday. 1700 miles from both of my grandsons homecoming dance. 1700 miles from the other 4 grandkids. 1700 miles from their life of scrapping, horses, dogs, cats, cows, pigs. Now that's what I call positive energy delivered to my door. Another big part of my reason for fighting this ugly thing called cancer. My husband, my daughters, son-in-laws and my grandkids are my reasons!!! The fear is mine and the pain is mine but knowing that my family and friends are there for me with hugs, prayers, positive energy, to listen to me whine through texts and phone calls, read my sometimes laborious blog, send me encouragement and mainly just caring, gives me courage, faith and strength. Today a big part of my needed courage showed up at my door. Today I got the other hugs I needed since the day I heard the words multiple myeloma. Take that cancer!!!
Quote:
Stand in your light and shine brightly because that's how you defeat the darkness!
Friday, September 16, 2016
Steroid night!
Slept most of the night until 4 AM. Stayed up a bit but back to sleep until 7:30. Breakfast and then my 17 and 4 pills. 10 treatment steroids (Dexacon) and 7 chemo pills (Cyclophosphamide or Cytoxin). So pretty good day. Had a little weakness in my lower legs this morning but that eventually past. Dinner and walked over to Michelle and Gery's for a bit. I am sure I talked Michelle's head off. Steroid high and that is why I am still up. Crash by Sunday.
Called to get the process started for my bone marrow/stem cell transplant. Talked to my Transplant Coordinator, Kelley. She hadn't heard from Cancer Center and my team here yet. Emailed my on the spot RN, Desiree. All info faxed to Kelley as of 4 today. My transplant doctor, Dr. Ochoa, and Kelly will review Monday or Tuesday. Then will be schedule for Pre-Transplant Testing for various medical tests that may include EKG, chest X-ray, CT scan of chest, bone marrow biopsy, labs, PET scan etc. I will have to have a psychosocial evaluation done by a social worker and a psychologist, pharmacy consult, financial consult and a transplant class. Then we will have a re-evaluation visit with Dr. Ochoa, my transplant doctor to finalize my plan. Phew!!! Look out Tampa, the Sunbergers will be hitting your town.
Quote:
I am going to fight for my life because that's what I want to do!
Slept most of the night until 4 AM. Stayed up a bit but back to sleep until 7:30. Breakfast and then my 17 and 4 pills. 10 treatment steroids (Dexacon) and 7 chemo pills (Cyclophosphamide or Cytoxin). So pretty good day. Had a little weakness in my lower legs this morning but that eventually past. Dinner and walked over to Michelle and Gery's for a bit. I am sure I talked Michelle's head off. Steroid high and that is why I am still up. Crash by Sunday.
Called to get the process started for my bone marrow/stem cell transplant. Talked to my Transplant Coordinator, Kelley. She hadn't heard from Cancer Center and my team here yet. Emailed my on the spot RN, Desiree. All info faxed to Kelley as of 4 today. My transplant doctor, Dr. Ochoa, and Kelly will review Monday or Tuesday. Then will be schedule for Pre-Transplant Testing for various medical tests that may include EKG, chest X-ray, CT scan of chest, bone marrow biopsy, labs, PET scan etc. I will have to have a psychosocial evaluation done by a social worker and a psychologist, pharmacy consult, financial consult and a transplant class. Then we will have a re-evaluation visit with Dr. Ochoa, my transplant doctor to finalize my plan. Phew!!! Look out Tampa, the Sunbergers will be hitting your town.
Quote:
I am going to fight for my life because that's what I want to do!
Quilt Pictures
(Click here to see previous blog post for all the details!)
Written on the back of my quilt:
"Circle of Family & Friends"
Made for my friend & former neighbor
Kathy Snowberger
by Nancy Corcoran, Chambersburg, PA
September 2016
machine quilted by
Roxanna Iser
"Circle of Family & Friends"
Made for my friend & former neighbor
Kathy Snowberger
by Nancy Corcoran, Chambersburg, PA
September 2016
machine quilted by
Roxanna Iser
The quilt backing has xoxo on it. I have always signed things to friends and family with xoxo
Here it is all spread out! Isn't it just beautiful?
Tommy loves the box the quilt arrived in.
Thursday, September 15, 2016
Made by Nancy!
Last night was a not able to sleep night. Bed to couch, bed to couch! Feet and hands achy, leg pains. I think I got about 3 hours total sleep until around 4 this morning. Then slept until close to 9. Felt tired all day. Did some shopping with mom before we took her home. Boy, did we have a thunder storm. I have said this before, I have never heard thunder like FL thunder.
Had the most beautiful, emotional surprise today. Kristi came carrying a large box in tow. Craftsy box. Craftsy is a website that has a lot of quilt kits to make. I thought maybe she ordered me a kit. But to my surprise, I opened it and there was a quilt made by Nancy (my Chambersburg neighbor). Not only did she made me a quilt, she made a circle of family and friends quilt. Nancy coordinated getting actual signatures of my family and friends on quilt patches and incorporated them into this beautiful quilt. Have a very emotional video of me when I realized what it was, which you won't see. Lol. Nancy was so happy I didn't have a clue about this wonderful surprise. No one let it slip. I can not express my thanks enough. This quilt will be snuggling me for years to come. I will post a picture once we figure out how to add a picture again. To end it all, when I flipped the quilt over, the backing is white material with xoxo all over it. Just perfect. Just beautiful.
Written on the back of my quilt:
"Circle of Family & Friends"
Made for my friend & former neighbor
Kathy Snowberger
by Nancy Corcoran, Chambersburg, PA
September 2016
machine quilted by
Roxanna Iser
Quote:
Friends become our chosen family!
Last night was a not able to sleep night. Bed to couch, bed to couch! Feet and hands achy, leg pains. I think I got about 3 hours total sleep until around 4 this morning. Then slept until close to 9. Felt tired all day. Did some shopping with mom before we took her home. Boy, did we have a thunder storm. I have said this before, I have never heard thunder like FL thunder.
Had the most beautiful, emotional surprise today. Kristi came carrying a large box in tow. Craftsy box. Craftsy is a website that has a lot of quilt kits to make. I thought maybe she ordered me a kit. But to my surprise, I opened it and there was a quilt made by Nancy (my Chambersburg neighbor). Not only did she made me a quilt, she made a circle of family and friends quilt. Nancy coordinated getting actual signatures of my family and friends on quilt patches and incorporated them into this beautiful quilt. Have a very emotional video of me when I realized what it was, which you won't see. Lol. Nancy was so happy I didn't have a clue about this wonderful surprise. No one let it slip. I can not express my thanks enough. This quilt will be snuggling me for years to come. I will post a picture once we figure out how to add a picture again. To end it all, when I flipped the quilt over, the backing is white material with xoxo all over it. Just perfect. Just beautiful.
Written on the back of my quilt:
"Circle of Family & Friends"
Made for my friend & former neighbor
Kathy Snowberger
by Nancy Corcoran, Chambersburg, PA
September 2016
machine quilted by
Roxanna Iser
Quote:
Friends become our chosen family!
Wednesday, September 14, 2016
Where ya been? Good news!
Miss my blogging last night. Was a very tiring day. Our day stared at 5 to get ready for an hour drive to Dr. Phillips Hospital. What a drive. Traffic, traffic and more traffic. Had a 3 hour MRI. Doped myself self up and made it through it. Actually slept through most of it. Last 20 minutes were rough.
Was out the rest of the day.
Today we had a consult with Dr. Sarriera. ALL MY NUMBERS (screaming this) were good. All of them even though I haven't finished a lot of my cycles. Dr. was smiling the whole time. My M protein, platelets, etc, etc, etc. And Dr. Sarriera says I am ready for a transplant. And would like it done this year. Revlimid is one of the drugs that is used for maintenance of Myeloma and since I am allergic to it, a transplant is highly recommended. There will be another drug to take the place of Revlimid for my maintenance program after the transplant. Will get this transplant moving and set up asap. Kristi said I have to cook Thanksgiving dinner.
As far as the tingling and numbness in my fingers and toes, I have neuropathy (nerve damage). This is being caused by my chemo injection of Velcade. Dr. has lowered the dosage for the rest of my injections. This should help.
Ended my good news day by picking up mom for an overnight. And we decided to have a seafood night. Crab legs, crab cakes, shrimp (Bloody Mary shrimp by Bill)! Yummy.
Quote:
There are going to be risks. Trust your doctor!
Miss my blogging last night. Was a very tiring day. Our day stared at 5 to get ready for an hour drive to Dr. Phillips Hospital. What a drive. Traffic, traffic and more traffic. Had a 3 hour MRI. Doped myself self up and made it through it. Actually slept through most of it. Last 20 minutes were rough.
Was out the rest of the day.
Today we had a consult with Dr. Sarriera. ALL MY NUMBERS (screaming this) were good. All of them even though I haven't finished a lot of my cycles. Dr. was smiling the whole time. My M protein, platelets, etc, etc, etc. And Dr. Sarriera says I am ready for a transplant. And would like it done this year. Revlimid is one of the drugs that is used for maintenance of Myeloma and since I am allergic to it, a transplant is highly recommended. There will be another drug to take the place of Revlimid for my maintenance program after the transplant. Will get this transplant moving and set up asap. Kristi said I have to cook Thanksgiving dinner.
As far as the tingling and numbness in my fingers and toes, I have neuropathy (nerve damage). This is being caused by my chemo injection of Velcade. Dr. has lowered the dosage for the rest of my injections. This should help.
Ended my good news day by picking up mom for an overnight. And we decided to have a seafood night. Crab legs, crab cakes, shrimp (Bloody Mary shrimp by Bill)! Yummy.
Quote:
There are going to be risks. Trust your doctor!
Monday, September 12, 2016
Dr. Z!
Still had some hip pain when I went to bed last night. Around 2:30 this morning, took pain pills and was able to sleep till 8. Nice omelet made by Bill for breakfast.
We had our Myeloma support group meeting tonight. Started with a pasta dinner. Lasagna, eggplant, penne, veggie, chicken and more. Then a very informative speech by an oncologist , Dr. Z, about a new exciting drug hitting the market soon for Myeloma. He started his career 30 years ago and at that time, there was only one drug to treat Myeloma. Within the last 10 years, there have been a major breakthrough of meds out there. Still not cureable but feels in a few years we will be able to use that word when talking about Myeloma. After speech, we all shared our stories about our journey with Myeloma. Some very happy stories and a few sad. Mostly happy. The longevity of some makes me more positive to what I have to look forward to. We lite a candle for one who passed this week.
Quote:
Your life can change in an instant!
Still had some hip pain when I went to bed last night. Around 2:30 this morning, took pain pills and was able to sleep till 8. Nice omelet made by Bill for breakfast.
We had our Myeloma support group meeting tonight. Started with a pasta dinner. Lasagna, eggplant, penne, veggie, chicken and more. Then a very informative speech by an oncologist , Dr. Z, about a new exciting drug hitting the market soon for Myeloma. He started his career 30 years ago and at that time, there was only one drug to treat Myeloma. Within the last 10 years, there have been a major breakthrough of meds out there. Still not cureable but feels in a few years we will be able to use that word when talking about Myeloma. After speech, we all shared our stories about our journey with Myeloma. Some very happy stories and a few sad. Mostly happy. The longevity of some makes me more positive to what I have to look forward to. We lite a candle for one who passed this week.
Quote:
Your life can change in an instant!
Sunday, September 11, 2016
Chicken fried steak!
Today was a downer day. Down from the steroids. Slept good but woke up with that pain in my hip. Ugh. No energy. Emotional. Feet tingling, fingers numb. Not much of an appetite. Got through the morning. Laid down around 12 and slept till 4:30. Did me good. Felt a little better but still not a lot of energy. Just finished a bubbling foot bath and smoothie. Thanks Michelle. Very relaxing.
I have been smelling things that are not really here. The other day it was chocolate chip cookies baking, cheese and today, chicken fried steak. Not having any taste buds must make my sniffer over react maybe??
Quote:
Remember you are entitled to any emotions you feel!
Today was a downer day. Down from the steroids. Slept good but woke up with that pain in my hip. Ugh. No energy. Emotional. Feet tingling, fingers numb. Not much of an appetite. Got through the morning. Laid down around 12 and slept till 4:30. Did me good. Felt a little better but still not a lot of energy. Just finished a bubbling foot bath and smoothie. Thanks Michelle. Very relaxing.
I have been smelling things that are not really here. The other day it was chocolate chip cookies baking, cheese and today, chicken fried steak. Not having any taste buds must make my sniffer over react maybe??
Quote:
Remember you are entitled to any emotions you feel!
Saturday, September 10, 2016
For Eyes!
No aches in the leg last night. Slept great. Do have tingling, sore feet though. Hands numb at the finger tips and down. I will take that over that leg pain. A little rash going on but nothing like the Revlimid balloon head rash.
Been up since 5:30. About to wind down, if those steroid 10 pills will let me.
Really was a good day. Breakfast Club, eye exams (called For Eyes-love it), Total Wine Store, Publix, made dinner, sat for an 1 1/2 hrs, Had Michelle and Gery over for dinner. Lots of laughs. So enjoy their company. Said dinner was great. I wouldn't know because I have no taste buds right now. They will come back they say. Who is they, I want to know?
Quote:
Hope is the only thing stronger than fear!!
No aches in the leg last night. Slept great. Do have tingling, sore feet though. Hands numb at the finger tips and down. I will take that over that leg pain. A little rash going on but nothing like the Revlimid balloon head rash.
Been up since 5:30. About to wind down, if those steroid 10 pills will let me.
Really was a good day. Breakfast Club, eye exams (called For Eyes-love it), Total Wine Store, Publix, made dinner, sat for an 1 1/2 hrs, Had Michelle and Gery over for dinner. Lots of laughs. So enjoy their company. Said dinner was great. I wouldn't know because I have no taste buds right now. They will come back they say. Who is they, I want to know?
Quote:
Hope is the only thing stronger than fear!!
Friday, September 9, 2016
No trip to Cancer Center today.
I am free of my Velcade chemo injection until September 23. However, I took my 7 chemo pills (cyclophosphamide) and 10 treatment steroids (Dexamethasone) along with my other daily vitamins and aspirin. This is a regular Friday for me. Bill and I went out a bit and had lunch even though I get tired about 2 hours after the pills. Just need out sometimes.
I slept fairly good again last night with the exception of some leg pain early this morning. Walked and then rubbed Blue Emu on it. Seemed to help. Will see how tonight goes. Tommy seems to be my heating pad at my feet now.
I would also like to thank all of you AGAIN for following my blog, sendings cards, sending positive energy, sending prayers, texting me encouragement and prayers and letting me know you are there if I need you. Great and wonderful family and friends. It truly means a lot to me and to Bill. He loves to see the smiles on my face and hear me laughing.
Quote:
Don't be afraid of tomorrow, God is already there!
I am free of my Velcade chemo injection until September 23. However, I took my 7 chemo pills (cyclophosphamide) and 10 treatment steroids (Dexamethasone) along with my other daily vitamins and aspirin. This is a regular Friday for me. Bill and I went out a bit and had lunch even though I get tired about 2 hours after the pills. Just need out sometimes.
I slept fairly good again last night with the exception of some leg pain early this morning. Walked and then rubbed Blue Emu on it. Seemed to help. Will see how tonight goes. Tommy seems to be my heating pad at my feet now.
I would also like to thank all of you AGAIN for following my blog, sendings cards, sending positive energy, sending prayers, texting me encouragement and prayers and letting me know you are there if I need you. Great and wonderful family and friends. It truly means a lot to me and to Bill. He loves to see the smiles on my face and hear me laughing.
Quote:
Don't be afraid of tomorrow, God is already there!
Thursday, September 8, 2016
Thursday-my good day!
Had some new pain early this morning. Lower back, down top front of leg and then my knee and down. Heating pad wasn't helpful nor was ice. Bill rubbed some Blue Emu on the areas and was able to relax a bit. Other then being fatigued, I had an okay day. Some new effects of my drugs that are cropping up - my finger tips are numb, palms slightly numb, bottom of my feet feel bruised when I walk on them, some tingling in my toes. I know all these side effects are caused by my chemo meds. I know these meds are destroying the bad and the good blood cells inside my body. I know this has to happen in order to get me to remission. I know that each day of all these aches and pains gets me closer to my stem cell transplant. I know that transplant will extend my life expectancy by double digits. I know eventually Bill and I will be at our happy place together again (and maybe a new sewing machine to make those quilts 😉).
Quote:
When it rains, look for rainbows. When it's dark, look for stars!
Had some new pain early this morning. Lower back, down top front of leg and then my knee and down. Heating pad wasn't helpful nor was ice. Bill rubbed some Blue Emu on the areas and was able to relax a bit. Other then being fatigued, I had an okay day. Some new effects of my drugs that are cropping up - my finger tips are numb, palms slightly numb, bottom of my feet feel bruised when I walk on them, some tingling in my toes. I know all these side effects are caused by my chemo meds. I know these meds are destroying the bad and the good blood cells inside my body. I know this has to happen in order to get me to remission. I know that each day of all these aches and pains gets me closer to my stem cell transplant. I know that transplant will extend my life expectancy by double digits. I know eventually Bill and I will be at our happy place together again (and maybe a new sewing machine to make those quilts 😉).
Quote:
When it rains, look for rainbows. When it's dark, look for stars!
Wednesday, September 7, 2016
No coke, root beer!
Bill and I were both able to finally get a good nights sleep. I think we were in bed by 9. I was up off and on for a few minutes but right back to sleep. Did have some pain break through around 3 or 4 but turned on the heating pad and slept on that. Helped. Going to bed that early, I was awake around 6. But took a long nap around 12. This is my Velcade no energy day.
Most of you know that my favorite soda is Coke. Regular Coke. I don't drink them a lot but I was really craving one today. Have taken a lot of sugar out of my life. And not one Coke in this house. But I did find a bottle of root beer (thanks Matt) and decided on that. Now if only my taste buds were working. 😋
Quote:
Cancer is a word, not a sentence!
Bill and I were both able to finally get a good nights sleep. I think we were in bed by 9. I was up off and on for a few minutes but right back to sleep. Did have some pain break through around 3 or 4 but turned on the heating pad and slept on that. Helped. Going to bed that early, I was awake around 6. But took a long nap around 12. This is my Velcade no energy day.
Most of you know that my favorite soda is Coke. Regular Coke. I don't drink them a lot but I was really craving one today. Have taken a lot of sugar out of my life. And not one Coke in this house. But I did find a bottle of root beer (thanks Matt) and decided on that. Now if only my taste buds were working. 😋
Quote:
Cancer is a word, not a sentence!
Tuesday, September 6, 2016
3AM
That was the time we arrived at the Cancer Center ER. Had been up most of the night, again walking the floor, sitting in a tub of hit water, creams, oils etc. We decided around 2 to just get dressed and go to the ER. Pain wasn't subsiding for very long. Labs drawn and a sonogram of my legs to look for blood clots. Nothing found. Sent me home with a pain pill. That worked for about 2 hours and pain back. Emailed Desiree and they made an appt for me to see Abby. She review everything that had happened the last few days. Ordered an MRI on my lower spine, hip and leg. That's next Tuesday. Checking to see if a lesion may have broken off and is pinching a nerve. Gave me a few pain pills to help me get through the next few days. Then on for more labs and my Velcade injection. Platelets even lower so had to check with dr. Sarriera to see if could take the injection. Was good to go. Left the Cancer Center in the midst of 5 PM traffic. Only took an hour for 15 miles. Now ready to pop a pain pill and hopefully get a good nights rest.
Quote:
When you come to the end of your rope, tie a knot and hang on!
That was the time we arrived at the Cancer Center ER. Had been up most of the night, again walking the floor, sitting in a tub of hit water, creams, oils etc. We decided around 2 to just get dressed and go to the ER. Pain wasn't subsiding for very long. Labs drawn and a sonogram of my legs to look for blood clots. Nothing found. Sent me home with a pain pill. That worked for about 2 hours and pain back. Emailed Desiree and they made an appt for me to see Abby. She review everything that had happened the last few days. Ordered an MRI on my lower spine, hip and leg. That's next Tuesday. Checking to see if a lesion may have broken off and is pinching a nerve. Gave me a few pain pills to help me get through the next few days. Then on for more labs and my Velcade injection. Platelets even lower so had to check with dr. Sarriera to see if could take the injection. Was good to go. Left the Cancer Center in the midst of 5 PM traffic. Only took an hour for 15 miles. Now ready to pop a pain pill and hopefully get a good nights rest.
Quote:
When you come to the end of your rope, tie a knot and hang on!
Monday, September 5, 2016
Pain relief please.
Last night wasn't so good for me. The pain in my right leg had me up all night again. Walked the floors, heating pad, ice, TENS, oils, Ben Gay. Nothing to the rescue. On the scale of 1 to 10 when measuring pain, I would have to say a 9. All night. Called my oncologist's office around 8:30. Answering service but took all info. The oncall nurse called me back within 1/2 hour. We discussed my pain at length. She then said she would call back after spoke to doctor. Put me on 650 mg Tylenol every 6 hours. Slept for a few hours this afternoon. If I have that pain in that severity and can't rest night, I am to go to the ER at the Cancer Center. Still there but at a level 4. Hoping I can make it through the night as I do have an appointment for Velcade tomorrow.
Quote:
Never give up. Life is worth having because there is life after cancer!
Last night wasn't so good for me. The pain in my right leg had me up all night again. Walked the floors, heating pad, ice, TENS, oils, Ben Gay. Nothing to the rescue. On the scale of 1 to 10 when measuring pain, I would have to say a 9. All night. Called my oncologist's office around 8:30. Answering service but took all info. The oncall nurse called me back within 1/2 hour. We discussed my pain at length. She then said she would call back after spoke to doctor. Put me on 650 mg Tylenol every 6 hours. Slept for a few hours this afternoon. If I have that pain in that severity and can't rest night, I am to go to the ER at the Cancer Center. Still there but at a level 4. Hoping I can make it through the night as I do have an appointment for Velcade tomorrow.
Quote:
Never give up. Life is worth having because there is life after cancer!
Sunday, September 4, 2016
Google maps!
My fluff is starting to look like a Google map screen. Left side, right side, left side, right side. After my Velcade injection Tuesday, I will not be stuck again until the 23rd. Continue with my Friday regiment of chemo pills and steroids though.
This achy, numbing in my right leg has got to stop. Been up off and on since about 4 trying to relieve the pain. Ugh. Took an Aleve, even though I am not to.
Was able to go help mom some today. Bill hung more pictures and mirrors etc. Mom got her bathroom straightened up and looking good. Just a few boxes to unpack. These have clothes, shoes and 1 million pocketbooks in them. She is waiting on Kristi to help her organize them. Looking good. Mom seems very content and happy as we all hoped she would.
Quote:
The mind keeps thinking you have had enough but the heart keeps telling you, don't give up!
My fluff is starting to look like a Google map screen. Left side, right side, left side, right side. After my Velcade injection Tuesday, I will not be stuck again until the 23rd. Continue with my Friday regiment of chemo pills and steroids though.
This achy, numbing in my right leg has got to stop. Been up off and on since about 4 trying to relieve the pain. Ugh. Took an Aleve, even though I am not to.
Was able to go help mom some today. Bill hung more pictures and mirrors etc. Mom got her bathroom straightened up and looking good. Just a few boxes to unpack. These have clothes, shoes and 1 million pocketbooks in them. She is waiting on Kristi to help her organize them. Looking good. Mom seems very content and happy as we all hoped she would.
Quote:
The mind keeps thinking you have had enough but the heart keeps telling you, don't give up!
Saturday, September 3, 2016
Steroid high?
Was able to sleep all night with minimal interruptions. NO, I repeat, NO burning, achy legs last night. Hope that continues. Was awake at 6:30.
Felt the steroid high mostly all day. And no foggy head. Cleaned the house, made lunch, tried to take a nap but eyes wouldn't close. Michelle text and ask if I wanted to go shopping. Sure. Michaels, TJ Maxx, Ross, BB&B and Hobby Lobby. Gone several hours. Made dinner once home. And I am still running on a steroid high. Need to crash here soon, don't ya all think?
Quote:
There is can in CANcer because we CAN beat it!
Was able to sleep all night with minimal interruptions. NO, I repeat, NO burning, achy legs last night. Hope that continues. Was awake at 6:30.
Felt the steroid high mostly all day. And no foggy head. Cleaned the house, made lunch, tried to take a nap but eyes wouldn't close. Michelle text and ask if I wanted to go shopping. Sure. Michaels, TJ Maxx, Ross, BB&B and Hobby Lobby. Gone several hours. Made dinner once home. And I am still running on a steroid high. Need to crash here soon, don't ya all think?
Quote:
There is can in CANcer because we CAN beat it!
Friday, September 2, 2016
10th Floor?
Got to the Cancer Center a little early today so we could stop at the pharmacy for my Decadron (treatment steroids). Taking 10 at once empties a bottle fast. Decided to go to the cafe there for coffee and tea since we were early. Most of you know how I am about elavators. Push the button for the 4th floor and wouldn't stay lite but started up anyway. Next thing we know we are going up and up. Of course, I start to panic. Elevator stops on 10th floor. And there we sit. Door doesn't open. Full panic mode. Prancing around. Bill pushes other buttons and nothing. Prancing and heavy breathing now. Tell Bill to push the open door button to see what happens. The door opens. We are on tenth floor. Receptionist looks at us and we tell her the problem and she said it's been like that all day. No way was I getting in it again to go down to 4th floor. Stairs didn't take you all the way down. There were two other elevators. Just waited till one of the other ones finally took our call and took that one with me cramped in back with a bunch of other people. Ugh. Anyway, the time spent in the broken elevator felt like 2 hours but it was about 5 minutes. Don't judge. Lol
Last night around 2, I woke up with horrible achy, burning pains in my right leg from top to bottom and left leg bottom. Nothing would ease it. Finally subsided ard 4. This has happened the last two nights. Emailed Desiree this morning described symptoms. She made arrangements with my chemo nurse, today was Kelly) to do testing with questions for possible neuropathy caused by Velcade (my chemo injection). After question, decided not that. Not sure exactly what is yet but we will continue to monitor. Added over the counter B Complex to my daily meds.
Took my 10 treatment steroids, 7 cyclophosphamide, vitamins, baby aspirin making this week two of my new cycle. Yippee.
Then on to Cancer Center. Had my labs done. Waited for results to mix injection. Results back but my platelets came back low. Thrombocytopenia-decreased in the number of platelets. Chemo drugs (Cyclophosphamide my new one) temporarily stop cells and platelets from dividing. Normal count is 145,000 to 355,000 cells. Mine today was 71,000. Nurse had to contact Dr. Sarriera to see if I was able to get my Velcade shot. Platelets are responsible for helping blood clot and line the inside of our blood vessels. Thus, I am at an increased risk of bleeding with injury. Lots of rules to follow. Dr. Sarriera said get the shot and did not take me off the new drug. Have to share this one rule - no contact sports. And it's football season. Oh well.
Finished our night at Kristi and Matt's with mom, Marilyn, Sasha and Ellie to have a belated birthday dinner for me. Lasagna, salad, chicken and a chocolate cake from Nothing Bundt Cakes. They even found candles saying FOREVER YOUNG. Cake so good. Took mom back to her new home and here I sit with steroid insomnia. Same as every Friday steroid night. 🤓
Quote:
You have to fight through the bad days to earn the best days of your life!
Got to the Cancer Center a little early today so we could stop at the pharmacy for my Decadron (treatment steroids). Taking 10 at once empties a bottle fast. Decided to go to the cafe there for coffee and tea since we were early. Most of you know how I am about elavators. Push the button for the 4th floor and wouldn't stay lite but started up anyway. Next thing we know we are going up and up. Of course, I start to panic. Elevator stops on 10th floor. And there we sit. Door doesn't open. Full panic mode. Prancing around. Bill pushes other buttons and nothing. Prancing and heavy breathing now. Tell Bill to push the open door button to see what happens. The door opens. We are on tenth floor. Receptionist looks at us and we tell her the problem and she said it's been like that all day. No way was I getting in it again to go down to 4th floor. Stairs didn't take you all the way down. There were two other elevators. Just waited till one of the other ones finally took our call and took that one with me cramped in back with a bunch of other people. Ugh. Anyway, the time spent in the broken elevator felt like 2 hours but it was about 5 minutes. Don't judge. Lol
Last night around 2, I woke up with horrible achy, burning pains in my right leg from top to bottom and left leg bottom. Nothing would ease it. Finally subsided ard 4. This has happened the last two nights. Emailed Desiree this morning described symptoms. She made arrangements with my chemo nurse, today was Kelly) to do testing with questions for possible neuropathy caused by Velcade (my chemo injection). After question, decided not that. Not sure exactly what is yet but we will continue to monitor. Added over the counter B Complex to my daily meds.
Took my 10 treatment steroids, 7 cyclophosphamide, vitamins, baby aspirin making this week two of my new cycle. Yippee.
Then on to Cancer Center. Had my labs done. Waited for results to mix injection. Results back but my platelets came back low. Thrombocytopenia-decreased in the number of platelets. Chemo drugs (Cyclophosphamide my new one) temporarily stop cells and platelets from dividing. Normal count is 145,000 to 355,000 cells. Mine today was 71,000. Nurse had to contact Dr. Sarriera to see if I was able to get my Velcade shot. Platelets are responsible for helping blood clot and line the inside of our blood vessels. Thus, I am at an increased risk of bleeding with injury. Lots of rules to follow. Dr. Sarriera said get the shot and did not take me off the new drug. Have to share this one rule - no contact sports. And it's football season. Oh well.
Finished our night at Kristi and Matt's with mom, Marilyn, Sasha and Ellie to have a belated birthday dinner for me. Lasagna, salad, chicken and a chocolate cake from Nothing Bundt Cakes. They even found candles saying FOREVER YOUNG. Cake so good. Took mom back to her new home and here I sit with steroid insomnia. Same as every Friday steroid night. 🤓
Quote:
You have to fight through the bad days to earn the best days of your life!
Thursday, September 1, 2016
Early riser.
A few aches last night but slept pretty good. Wake up around 5:30 and couldn't go back to sleep. Today was a I feel mostly normal day other then normal not a lot energy. But getting myself ready to take my 7 new chemo pills and 10 treatment steroids. Then off to Cancer Center for my chemo shot. This is going to be my Friday for several weeks fighting towards remission. I will take it so get there!
Got mom moved. Her room is shaping up nicely. Still a lot more to go through but will get done slowly but surely. Kristi was a great help as always. Last I talked to mom, she was having dinner with her three new friends and then going to play bingo. Sure helped me with my stress level. This is a good thing.
Quote:
Spare me some patience if you could!
A few aches last night but slept pretty good. Wake up around 5:30 and couldn't go back to sleep. Today was a I feel mostly normal day other then normal not a lot energy. But getting myself ready to take my 7 new chemo pills and 10 treatment steroids. Then off to Cancer Center for my chemo shot. This is going to be my Friday for several weeks fighting towards remission. I will take it so get there!
Got mom moved. Her room is shaping up nicely. Still a lot more to go through but will get done slowly but surely. Kristi was a great help as always. Last I talked to mom, she was having dinner with her three new friends and then going to play bingo. Sure helped me with my stress level. This is a good thing.
Quote:
Spare me some patience if you could!
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